Health Organization for Pudendal Education

Hi Griff,
It would be better if you have the 3 Tesla MRI with Dr. Potter.This MRI report doesn't mention neither the ligaments nor the Alcock's Canal or the branches of the Pudendal nerve.What does the radiologist mean by the path of the nerve?

Best Regards,
Ali

Griff,

I see from your history that you have already had 3 nerve blocks with several hours of relief. If you are talking about pudendal nerve blocks then you can be rather confident about your self diagnosis. I am not clear though what kind of blocks you have had and who did them. I am inclined to think that perhaps before you make any more appointments you should think about where you would want to go should you decide on surgery as there are different requirements depending on who you decide on.

Best wishes,
Jeanie

Grif,
Please do your research and consult with different doctors and different approaches to surgery ,before rushing into surgery.Make sure that your ligaments are repaired after surgery,because you don 't want to have your ligaments severed for no good reason.There is a high possibility that you might have Pelvic instability if your ligaments aren't repaired.

All the best,
Ali

JeanieC wrote:Griff,

I see from your history that you have already had 3 nerve blocks with several hours of relief. If you are talking about pudendal nerve blocks then you can be rather confident about your self diagnosis. I am not clear though what kind of blocks you have had and who did them. I am inclined to think that perhaps before you make any more appointments you should think about where you would want to go should you decide on surgery as there are different requirements depending on who you decide on.

Best wishes,
Jeanie

I agree with Jeanie. If you get diagnostics from a surgeon whose method you don't want to have, then you could have to repeat the diagnostics with the surgeon that you choose based on method. Save yourself time, money, and discomfort by minimizing do-overs.

I do appreciate your desire to have a diagnosis completed by a doctor soon...but this situation isn't like other ones you have been through.

Thanks for all the input. This is my plan at the moment. I plan to call my dr and ask him to contact dr potter and ask her to read the scan. I do not have faith in the radiologist that read it because she did not make any comments about the ligaments or the pudendal canal. I wonder what she thinks is causing my sitting pain?!

I spoke with dr Conway yesterday and plan on calling his office next week for an appt so that I can have the EMG test done. I am NOT considering surgery at this time because I don't even have a diagnosis. If I were to need surgery my top pick would be hibner but I do not want to wait 6-8 months for an appt with him in order to have diagnostic tests done.

Sounds like a good plan, Griff. Dr. Conway is one of the nicest people I've ever met and more than willing to help people in any way he can. I wish he did TG surgery. Best wishes with your plan. Please keep us updated!
Warmest regards,
Karyn

Griff522 wrote:If I were to need surgery my top pick would be hibner but I do not want to wait 6-8 months for an appt with him in order to have diagnostic tests done.

He doesn't even do diagnostics, he just goes by history.

Celeste wrote:He doesn't even do diagnostics, he just goes by history.

Well that makes me think I'm doing the right thing then.

Who told Celeste that Dr. Hibner doesn't do diagnostic tests and just goes by history.This is not a fact at all.

AliPasha1 wrote:Who told Celeste that Dr. Hibner doesn't do diagnostic tests and just goes by history.This is not a fact at all.

Dr. Hibner himself did, in the article that he published this past winter.