Karyn,
You had the 3T MRI with Potter, right? Then she should have been able to see if there was a labral hip tear or not. My 1.5T MRI from Kalinkin says no labral hip tears. If it doesn't say you should contact her and have her double check it. We have a lot of similarities of pain though so I bet your pain is mostly coming from your pelvic misalignment.
Torqued Pelvis
Re: Torqued Pelvis
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Re: Torqued Pelvis
Good suggestion, Faith. Thank you! My experience with getting Dr. Potter to re-read my MRI hasn't been as positive as others. I don't know if it's because I was one of the first to see her, but I did contact her before my surgery because I had some non-PN related questions. She basically told me something like,
"at the end of the day, it's the patients symptoms that matter, not the imaging" and I should take my questions up with a treating physician.
Lernica, did your labral tear show up on a 1.5 Tesla, or did you have a (non-Potter) 3T?
"at the end of the day, it's the patients symptoms that matter, not the imaging" and I should take my questions up with a treating physician.
Agreed.Faith wrote:We have a lot of similarities of pain though so I bet your pain is mostly coming from your pelvic misalignment.
Lernica, did your labral tear show up on a 1.5 Tesla, or did you have a (non-Potter) 3T?
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Torqued Pelvis
I had just a normal MRI, not a 3T. BTW, an experienced hip surgeon can pick up a labral hip tear even on a normal x-ray image. The hip surgeon I've been seeing ordered an x-ray and showed me the tear on the image, even though it was not noted in the radiology report!Karyn wrote:
Lernica, did your labral tear show up on a 1.5 Tesla, or did you have a (non-Potter) 3T?
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
Re: Torqued Pelvis
Hi Karyn,
Yes, I was told by my first regular PT I had sacral torsion, but she was my first treatment, then I had more tingling in my left leg, was sent to a neurologist, oh maybe a back problem, no it's not, then saw a chiro - 13 visits, and that's when my vaginal pain started. So I'm leary of chiro treatments for PN, but who knows maybe the pain would have started any ways. My current pelvic floor PT said I have mild SIJD, and yes, some sacral torsion, she does manual adjustments.
Sounds like I'm in the same club!
Debbie
Yes, I was told by my first regular PT I had sacral torsion, but she was my first treatment, then I had more tingling in my left leg, was sent to a neurologist, oh maybe a back problem, no it's not, then saw a chiro - 13 visits, and that's when my vaginal pain started. So I'm leary of chiro treatments for PN, but who knows maybe the pain would have started any ways. My current pelvic floor PT said I have mild SIJD, and yes, some sacral torsion, she does manual adjustments.
Sounds like I'm in the same club!
Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
Re: Torqued Pelvis
[
Well, that's a problem. It really does matter who's reading your images. I hear of this kind of thing all the time. I was recently "dismissed" by a Hip Ortho, saying my problem "isn't coming from my hips". That may be true, but (whatever) is most certainly impacting my hips in a very negative manner. This person never heard of SIJD, PS and wasn't the least bit interested in discussing how the sacrum and respective ligaments/tendons work with the hips. Further, this person informed me that the sacrum had nothing to do with the hips and that it was a "spinal problem".
As far as PT & Chiro are concerned in regards to PN(E), it really depends on what your issue is - PN or PNE. Unless you undergo what Lernica just did, all the "conventional" PT and Chiro in the world aren't going to be helpful, if you have a true entrapment. Are you benefitting from the manual adjustments?
]Lernica wrote:The hip surgeon I've been seeing ordered an x-ray and showed me the tear on the image, even though it was not noted in the radiology report!
Well, that's a problem. It really does matter who's reading your images. I hear of this kind of thing all the time. I was recently "dismissed" by a Hip Ortho, saying my problem "isn't coming from my hips". That may be true, but (whatever) is most certainly impacting my hips in a very negative manner. This person never heard of SIJD, PS and wasn't the least bit interested in discussing how the sacrum and respective ligaments/tendons work with the hips. Further, this person informed me that the sacrum had nothing to do with the hips and that it was a "spinal problem".
I understand your concern, Deb. However, as we previously discussed, I really don't believe all medical professionals are created equal. Some have more knowledge and/or skills than others. I stopped seeing my previous Chiro and started with this new one because he has more to offer on many different levels.deBBieW wrote:I'm leary of chiro treatments for PN
As far as PT & Chiro are concerned in regards to PN(E), it really depends on what your issue is - PN or PNE. Unless you undergo what Lernica just did, all the "conventional" PT and Chiro in the world aren't going to be helpful, if you have a true entrapment. Are you benefitting from the manual adjustments?
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Torqued Pelvis
Hi Karyn,
I would say the manual adjustments are to keep the SI sort of in place, this was never the major problem for me, but it is all connected. My PT checks my SI whenever I'm there, and some days I'm more "in place" than others. I don't have SI pain on a regular basis. I think what has helped me the most to date are the 2 recent nerve blocks, my vag pain is reduced a lot, still have other pain, but that is better. And I agree not all chiros or PT's or docs are the same, and I didn't go into the chiro saying I think I have PN, at that time I thought it was a back problem, pinched nerve issue. After taking xrays, of course he could find things wrong with my spine etc., even though my MRI was pretty much unremarkable. He gave me great advice for core strengthening, which I need, but knowing what I know now, it was not a good idea. He couldn't treat me further, and referred me to a pain med specialist for a facet injection, which was not needed, and I didn't do. We have all gotten incorrect treatments. That's just my experience, and hopefully yours will be completely different, and will help. I just wanted to tell you mainly that I too have sacral torsion, per my PT's, not the chiro. And of course, I don't really know if I have PN or a PNE, yet...... waiting for Potter's appointment in April. I can't wait to go.
take care, Debbie
I would say the manual adjustments are to keep the SI sort of in place, this was never the major problem for me, but it is all connected. My PT checks my SI whenever I'm there, and some days I'm more "in place" than others. I don't have SI pain on a regular basis. I think what has helped me the most to date are the 2 recent nerve blocks, my vag pain is reduced a lot, still have other pain, but that is better. And I agree not all chiros or PT's or docs are the same, and I didn't go into the chiro saying I think I have PN, at that time I thought it was a back problem, pinched nerve issue. After taking xrays, of course he could find things wrong with my spine etc., even though my MRI was pretty much unremarkable. He gave me great advice for core strengthening, which I need, but knowing what I know now, it was not a good idea. He couldn't treat me further, and referred me to a pain med specialist for a facet injection, which was not needed, and I didn't do. We have all gotten incorrect treatments. That's just my experience, and hopefully yours will be completely different, and will help. I just wanted to tell you mainly that I too have sacral torsion, per my PT's, not the chiro. And of course, I don't really know if I have PN or a PNE, yet...... waiting for Potter's appointment in April. I can't wait to go.
take care, Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .