5 years, still pain.. still not found love :(

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
spikehades
Posts: 18
Joined: Fri Dec 10, 2010 4:49 pm

Re: 5 years, still pain.. still not found love :(

Post by spikehades »

Candice. I would definitely suggest going back to your gp, take someone with you, if not your mother a friend even perhaps. brief them before you go to your appointment and have a plan of action. Sometimes its best to take it in steps.
1. First thing to do is get this acknowledged as a nerve pathology. you need to tell you doctor that you are experiencing nerve pain and would like to consider the first line treatments/analgesics for neuralgia.
2. Take this medication as prescribed. Hopefully this should ease some of your pain. If it does then, your GP cannot deny that it is a peripheral nerve problem. Perhaps mention that its maybe the pudendal nerve and articulate exactly where you feel the pain. Take a picture with an outline of the human form (the ones that physiotherapists usually use) and shade in the painful areas. Depending on your GP's response either;
A: ask for a referral to a pn specialist in London or Bristol. Your GP may not go for that. If he/she doesn't then;
B: request a pain management referral or a neurology referral.
And then go from there.

Perhaps play down your anxiety issues or try to contain or control them as much as possible. I work with clinician's daily and patients with anxiety disorders just are not taken seriously as other patients. Do bear in mind that GPs' are under tremendous pressure as they have time, compliance, regulation and financials to consider also. You need treatment now, and I would argue that your PN issues are more pressing than your anxiety issues at the moment.

Please feel free to PM me. I have had to do this the hard way, but eventually I have been listened to and I am able to request a referral to Bristol when I feel it necessary. Fortunately my PN is under control at the moment and I have developed a unique way of sitting. Although I do experience pain flares, my greatest anxieties were relieved once my GP acknowledged my condition and agreed to help me.
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