Health Organization for Pudendal Education

Sam,
I agree with birdlife that it's still not enough hours of sleep. Could you address this with you pain dr. as well? I think Ambien would be beneficial for you, really. If you are sleep deprived it is so hard to deal with the pain. It's hard enough on a good night's sleep.

cari

Thanks for the posts birdlife and cari, I will try the TP massage to see if it will ease my symptoms. This disease is very debilitating. On a scale of 10, my pain is around 6 to 7 normally, it is also hard to convince the doctors of the pain when it is so invisible. Thanks again to this website for letting me share my thoughts.

Sam, many other things can also lead to insomnia besides pain, such as medication and certain other vitamin, or hormone deficiencies, which you can get your primary care doctor to test for all of these with one single blood test, but you have to make sure to request a, diabetes, Testosterone Test and also Vitamin D, Vitamin B, anemia, test from him, and at the least request a Comprehensive Metabolic Panel test (CMP). I have low Testosterone and I'm only 37 and insomnia is an effect of Low T. You can get low Testosterone in your 20s or 30s and not always when older. Having said that, Ambien is the best thing I ever have taken and it saved my life because I could not sleep at all and it caued fatigue and higher blood pressure and lack of sleep made my pain worse in the morning also. If you want to try a natural approach, you an get Melatonin from Walmart 5mg in a chewable form, which is what our bodies use for helping us to sleep and see if that helps or Simpy Sleep, which is an over the counter product. If none of these help, I'd strongly recommend talking to your doctor about Ambien at least temporarily until you get a bloo

Sam, many other things can also lead to insomnia besides pain, such as medication and certain other vitamin, or hormone deficiencies, which you can get your primary care doctor to test for all of these with one single blood test, but you have to make sure to request a, diabetes, Testosterone Test and also Vitamin D, Vitamin B, anemia, test from him, and at the least request a Comprehensive Metabolic Panel test (CMP). I have low Testosterone and I'm only 37 and insomnia is an effect of Low T. You can get low Testosterone in your 20s or 30s and not always when older. Having said that, Ambien is the best thing I ever have taken and it saved my life because I could not sleep at all and it caued fatigue and higher blood pressure and lack of sleep made my pain worse in the morning also. If you want to try a natural approach, you an get Melatonin from Walmart 5mg in a chewable form, which is what our bodies use for helping us to sleep and see if that helps or Simpy Sleep, which is an over the counter product. If none of these help, I'd strongly recommend talking to your doctor about Ambien at least temporarily until you get a blood test, talk with your doctor, and see if there is any other medical things hindering your sleep problem.

Motrin PM is also a convenient way to get sleep, is not addicting and over the counter.

Thanks shawnmellis and Alan for the posts, yes I do have vitamin d deficiency, am also menopausal and the stress and pain, all these together are making me sleepless, i think. I will also try the over the counter medicine that Alan has mentioned, anything which makes us a little better is invaluable. I have started using pain patches and I find it very soothing for the back pain.

Hi
As if the daily pain were not enough to spoil my life, the last month was terrible. I wasn´t able to sleep more than 2 hours each day. I feel like a zombie when i go to my job. I feel a kind of electrical continous current that start on my testicles, pass through my inferior pudendal and go on on its way to the brain. It´s not very painfull, but enuough to wake me up. I used to take alprazolam, 1 mg. It makes me a great depress of my cns and was very helpfull in the past for my sleep, but the electrical current never stops and wake me up at 2 am. Then, i´m not able to sleep again. I´m in big desperation, it is very hard to work with the pain, and now that makes things worst. I´m afraid to lose my job for this. I read here that someone said ambien can help, so i want to know if it´s good enough to change the xanax for the ambien, and about the side effects. I´m a male at my forteens and i have to keep on working for at last two decades. Hope someone answer this, Thanks in advanced.

What has helped me a great deal with sleep is the old anti depreseant doxipen. I have been on it for 32 years. If you want something that works that's not adictive try this. You will sleep. 75 mg right before bedtime. I am not a doctor so check with him or her..You will have a slight groggey effect for about half an hour or so the next morning. But it wears off quickly...Robert

Clonazepam which is related to ambien/xanax helped me sleep. It worked better than either of the other two -- possibly because it also has some anti-seizure properties. It reduced the shocks that kept me awake. Ambien also helped me fall asleep but didn't do much for the electric shocks.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000635/