Health Organization for Pudendal Education

Missmarple;
The name tells me, you are a mystery reader. I am big time. When you're lyeing on your belly much of the day, what the heck else is there to do.
I digress. I'm taking the Valium suppository rectally and I believe it helps. I take Neuontrin also but I hate it. I've tried getting off of it before my surgery, but I end up in more pain so I guess it does help a bit. Most of the time I take Ultram,( Tramadol). I find that works the very best. I tried the slow active Tramadol and it didn't work for me so I take the 50 mg. tablets. Two in the AM and then 2 sometime in the afternoon. Two before I go to bed around midnight even if I don't feel a lot of pain. When I don't do that, I wake up wanting to jump off a bridge because the pain is so bad. My pharmacist told me to not let the pain meds run down in my body or else it would take a lot more to get the pain under control. Hence the nightly dose.
Just something for you to think about. I hope this helps a little;
Best wishes for a less painfull day;
Doreen

Hi Miss M,
Hopefully the valium, or one of its cousins, will give you some relief. Like you, I've had this pain for a long time. Like you, also, I haven't tolerated neurontin (made me feel seriously weird) and morphine (caused threatening hallucinations); oxycodone ditto with the hallucinations. Amitriptyline, however, has helped (didn't used to think it did, until I came off it) and so, surprisingly, has codeine.

Quitter: I tried 50mg Tramadol and I might just not have taken them for the lack of relief they gave me. Vicodin, Percocet, no relief whatsoever, so that's why Valium may do the trick.
My Pain Management Dr, who diagnosed me with PN referred me to an Ob/GYN who he said was the "Expert" in this area. When I saw him he insisted, based on a questionaire, that I had IC and procedded to give me an instillation of Heparin and Lidocaine. That was last September and I have had additional pain since then. Needless to say I have never been back to the "Expert", but being very short of breath and in pain constantly I am getting desperate for some relief. I have no bladder symptoms such as frequency or urgency - just pain. Sitting is HELL.