Health Organization for Pudendal Education

Hi Michaela, I had four injections for pudendal neuropathy last year, then had the decompression surgery in Sept of '10, with Antolak. I am 11 months post op and in worse pain now than before the surgery. I am also experiencing severe pain in my piriformis muscle and as a result, sciatic nerve pain. Those piriformis spasms may also be impeding the healing of the pudendal nerve.

I saw Antolak this week and he suggested I see a Physiatrist or Orthopedic specialist to look into a possible injection into my piriformis to calm it down. Not sure if the piriformis issue is related to SI Joint dysfunction, but it could be. I like Antolak, and on the one hand I tell myself to be patient and see if the nerve still heals (he told me 9-24 months). But living in this kind of pain daily, not being able to sit, can't work more than 4 hours a day (standing up at my desk), causes me also to seek out other potential remedies. I have been reading a lot about Dr. Dellon, but his methods have to be considered experimental at this stage, and I worry about possible long-term problems, even more than I have now.

Not sure if answered your question about which Dr.

Hi Michaela, I had four injections for pudendal neuropathy last year, then had the decompression surgery in Sept of '10, with Antolak. I am 11 months post op and in worse pain now than before the surgery. I am also experiencing severe pain in my piriformis muscle and as a result, sciatic nerve pain. Those piriformis spasms may also be impeding the healing of the pudendal nerve.

I saw Antolak this week and he suggested I see a Physiatrist or Orthopedic specialist to look into a possible injection into my piriformis to calm it down. Not sure if the piriformis issue is related to SI Joint dysfunction, but it could be. I like Antolak, and on the one hand I tell myself to be patient and see if the nerve still heals (he told me 9-24 months). But living in this kind of pain daily, not being able to sit, can't work more than 4 hours a day (standing up at my desk), causes me also to seek out other potential remedies. I have been reading a lot about Dr. Dellon, but his methods have to be considered experimental at this stage, and I worry about possible long-term problems, even more than I have now.

Not sure if answered your question about which Dr.

Hi Gregg and others,

Those are the potential problems that the patients are trying to the attention of the doctors.Dr Hibner,Bautrant,Antalok,Beco,Tibet and Conway have made some headway as far as Pelvic instability is concerned after these PNE surgeries especially after TG approach.


The main issue is the denial of Roger Robert of Nantes and the Houston who keep on denying that there is any Pelvic instability.The reason is best known to themselves.The ligaments are there for a purpose and it's an evolution of a monkey's or chimpanzees tail as being the main reason that we don't need those ligaments.I believe that the Piriformis muscle could be the result of transposing the nerve at ischial spine or the missing SS ligament.

Regards,
Ali

AliPasha1 wrote:The main issue is the denial of Roger Robert of Nantes and the Houston who keep on denying that there is any Pelvic instability.The reason is best known to themselves.

If they weren't getting good results, they would stop. The internet forums have not convinced them they're not getting good results, apparently!

I'm certain that it doesn't bother them if patients choose to go elsewhere, so I can't fathom why it would bother somebody else. People have choices and will live with the results of those choices, so I'm just not seeing any issue.

I am still trying to make my mind up on which doctor I should see, Dr. Hibner or the team at Houston.I like the Houston team because a Neurosurgeon does the surgery(Dr Ansell). The only thing I don't like about the team at Houston is that Dr ansell cuts out the Sacrotuberous Ligament.What I like about Hibner is that he repairs this ligament.What I don't like about Hibner is that he a OB/GYN not a Neurosurgeon.
This is not going to be a easy decision to make.

I am still trying to make my mind up on which doctor I should see, Dr. Hibner or the team at Houston.I like the Houston team because a Neurosurgeon does the surgery(Dr Ansell). The only thing I don't like about the team at Houston is that Dr ansell cuts out the Sacrotuberous Ligament.What I like about Hibner is that he repairs this ligament.What I don't like about Hibner is that he a OB/GYN not a Neurosurgeon.
This is not going to be a easy decision to make.

I am still trying to make my mind up on which doctor I should see, Dr. Hibner or the team at Houston.I like the Houston team because a Neurosurgeon does the surgery(Dr Ansell). The only thing I don't like about the team at Houston is that Dr ansell cuts out the Sacrotuberous Ligament.What I like about Hibner is that he repairs this ligament.What I don't like about Hibner is that he a OB/GYN not a Neurosurgeon.
This is not going to be a easy decision to make.

Joddy,

You will regret having the ligaments severed by the Houston team.There are too many bad cases of Pelvic Instability and the PNE success rate is still not upto the standard.You might not improve at all and have a secondary issue like SIJD,Piriformis muscle syndrome,tailbone pain etc

Regards,
Ali

Joddy, no one can predict what your surgical outcome will be. I wish you all the best with your decision and I hope you can find relief.

Thanks Celeste. I am still worried about severing the Sacrotuberous ligaments. I'm afraid that I will have pelvic instability if these ligaments are severed. I think you said you had these ligaments severed and did not have any problems. I am a male and that might make a difference when severing these ligaments.