Useful internet links

[kat]

Thanks for explaining that to me.
Should we get our own logo for this site?
Should we have merchandise?

[Celeste]

I'd really like to know more about how the money collected would be used.

[Mod4]

Kat

As you can see at the top of every page here we have our Logo which is a lifesaver with the inscription of HOPE.
I have no idea where any funds would be distributed from the site you recommended. Our mission is to provide help and support to PN sufferers and any donations will be ensured to provide this in the future and also to ensure that we can educate the whole community about Pudendal Neuralgia.
I did look up the site you suggested, but i cannot view the inscription on the garments displayed. Before i would consider purchasing anything from them I would also want to know where the funds were allocated to and what the inscription actually said!

[kat]

I agree. I'm so new to this PN thing and you all are the experts.
Are we allowed to use this logo (the life preserver with hope on it)?
What does it stand for?
Is it supposed to be something we sit on or just a representation of throwing a life line to all of us suffering?
I want to raise awareness and am confused by there being different logos for PN.
Where does the money go from cafepress?
Does thay guy even have PN?
I want to raise awareness and want to do it in the most respectful way possible.

Kathy

[Celeste]

IWhat does it stand for?
Is it supposed to be something we sit on or just a representation of throwing a life line to all of us suffering?
I want to raise awareness and am confused by there being different logos for PN.
Where does the money go from cafepress?
Does thay guy even have PN?

Health Organization for Pudendal Education....HOPE (hint: it's across the top of the page!) is the name, the life preserver is the symbol for helpful support in a difficult time (at least that's my impression). But if sitting on a life preserver helped at all I'm sure people would do it. I doubt they'd work, though. They're kind of hard.

Mitch had PN surgery with Dr. Antolak. He posted about how he was raising the funds from CafePress items to start a website. It's in the Discussion section on the Facebook group. I don't know how much money he needs; he will have site internet fees but might also want to be paid for his time. You will have to ask him directly.

Every site can have its own logo, or not. It's new for these sites to have a logo.

[Selbourne]

Here is something a little newer, posted by some patients of Dr. Wise. This is a very concise rendering of what was very valuable information on the previous forum. I think it's required viewing for anybody who is interested in the program, BEFORE they commit substantial finances to it.

http://www.youtube.com/watch?v=3ozT8r2FBQs

saw it, thanks, also saw the response at http://www.chronicprostatitis.com/forum ... =36&t=7191

dont think this sort of thing helps anyone

[Celeste]

saw it, thanks, also saw the response at http://www.chronicprostatitis.com/forum ... =36&t=7191

dont think this sort of thing helps anyone

Well this will certainly help people.

http://www.youtube.com/watch?v=ckvVYLBB ... u_in_order

[Selbourne]

Sorry, dont find that useful either. Its all about anonymous claim and accusations ... who is this person making the videos ... could be anyone,, may be a competitor of Weiss.

blech .. nope, I'll pass

[Amanda]

I have not found this link very useful either.
Selbourne would you like to inform us as to your history with PN issues.....and maybe your location so that we can assist you to local medical centres who can help you find some answers.
We would like to know more about you.