Health Organization for Pudendal Education

Thanks Calluna,
I'm so happy that you are having success and less pain, thanks so much for your advice, my pain specialist has not got a good bed side manner and even though i have been told he is one of the best, talking to him and getting answers is like pulling teeth lol.

Thanks Sue, your sure sound happy i hope that means your not in any pain. These meds sure do mess with our minds and bodies and as i said to Calluna, my pain specialist is not easy to talk too. Regarding my Thyroid and diet, i no longer have a thyroid it was removed last october it was full of stage 4 cancer and also spread to my lymph glands in my neck and 3 nerves in my throat. Another 2mths and my voice box would have been removed. I have had treatment and go back every 3mths for blood tests and 6mth scans i have one coming up in Sept. There is a higher chance of it coming back again and statistics say i have a 51% chance of still being alive in 5yrs time, so you can see why i want to get this pain under control so i can live a little instead of being housebound. Because i have to have replacement thyroid meds because your thyroid controls most things in your body, i have mine at suppressed levels and that can cause heart problems and palpitations. Also amitrip can cause palpitations in some people, so thats why i have to be careful increasing the Amitrip even though its only by a small amount. The last blood test 2mths ago, showed my levels were suppressed( and that helps to stop the cancer cells from growing) but i was having palpitations so i had to adjust my thyroid meds a little higher and when i go back for more tests next month they may have to be changed again. This will be ongoing for the rest of my life. I don't worry about what the statistics say, but i just want to have a better quality of life while i can and i wish that for all who suffer from chronic pain that effects every area of our life. I don't have a partner, but if i did sex would be out of the question, it would be too painful. I will continue the amitip and hope the dry mouth, eyes and fuzzy head ease up in a couple of weeks and will check everything out with my oncologist next month. My .GP. who i have known for 20yrs said i could go up to 20mgs depending on how i handle side effects or palpitations.
I do hope that your feeling better on you lower dose of meds.
best wishes to you and Calluna xx

Hello Calluna always lovely to hear from you also you give such sound advice and that's just what Lyneete needs at the moment so thanks for that also.
Did I say pregablin and something else will have to look back I thought I had written (i will look back on that also ..) that CYmbalta/Duloxatine and Amytriptlyne were from the same family ..my apologies if I was wrong but it 's good to know someone can correct and that I truly appreciate.
Lyneete sweetie
I am in pain every day all day ...and nothing takes away the pain for me sad...I even have high strenght morphine patches that should last three days but on me last two must dash love to you both I will follow your progress Lyneete and if you have a doc you think isn'st caring or listening get another one! love to you both ...glad to hear pregablin working for you Calluna good for you ..bye Little mo xxx

Hi Sue,
I'm sorry that pain meds don't work for you, i can relate to the frustration and how weary we become. Have you a definite diagnosis of what is causing your pain? or like me, specialist are just guessing its my adhesions that are pressing on pelvic nerves. I hope that you can get the right combination to help ease your pain.
love lynette