Re: Where are the post-ops?
Posted: Wed Aug 03, 2011 2:48 am
Hi all,
Thanks for thinking of me. It's been a rough road. However, I feel that I am ( was, whatever) entrapped in the most difficult spot to address: the distal Alcock's canal and the perineal branches. Dr. Hibner found entrapment at the proximal (posterior) end of the Alcock's canal during my TG surgery last November. That pulling and stretching sensation there is gone. The pain has moved more forward (anterior) and I believe that he did his best to reach all the way to the distal Alcock's canal. However, who knows what happened or what/where my entrapments were in the first place. Lyrica did a great job at masking my pain, but the side effects were too much for me, and honestly, my goal is to be med-free and just fixed by surgery. Right now I am continuing to trust that Dr. Hibner can fully fix me, and for now, it is a waiting game. I trust Dr. Hibner, and he is a kind and careful surgeon.
I know that some are going to Dellon or flying to Austria to see Aszmann and I have considered the latter. However, I really believe in the Neurawrap, and so I am continuing to work with the surgeon that has already operated on me once and has done two other procedures on me (Botox, nerve block).
Do not let my post discourage you. Many are being helped and cured by the traditional TG surgery. The distal Alcock's and the tiny, tiny perineal branches are so specific. Remember, everyone had their own "injury" and mine just happened to be my sweet daughter's skull growing against that area. God has me on the journey for a reason --- but I pray it ends SOON.
I'd like to leave the PNE cult... LOL. Wouldn't we all?? Love to you all!!!
A's Mommy
Thanks for thinking of me. It's been a rough road. However, I feel that I am ( was, whatever) entrapped in the most difficult spot to address: the distal Alcock's canal and the perineal branches. Dr. Hibner found entrapment at the proximal (posterior) end of the Alcock's canal during my TG surgery last November. That pulling and stretching sensation there is gone. The pain has moved more forward (anterior) and I believe that he did his best to reach all the way to the distal Alcock's canal. However, who knows what happened or what/where my entrapments were in the first place. Lyrica did a great job at masking my pain, but the side effects were too much for me, and honestly, my goal is to be med-free and just fixed by surgery. Right now I am continuing to trust that Dr. Hibner can fully fix me, and for now, it is a waiting game. I trust Dr. Hibner, and he is a kind and careful surgeon.
I know that some are going to Dellon or flying to Austria to see Aszmann and I have considered the latter. However, I really believe in the Neurawrap, and so I am continuing to work with the surgeon that has already operated on me once and has done two other procedures on me (Botox, nerve block).
Do not let my post discourage you. Many are being helped and cured by the traditional TG surgery. The distal Alcock's and the tiny, tiny perineal branches are so specific. Remember, everyone had their own "injury" and mine just happened to be my sweet daughter's skull growing against that area. God has me on the journey for a reason --- but I pray it ends SOON.
I'd like to leave the PNE cult... LOL. Wouldn't we all?? Love to you all!!!
A's Mommy