nortriptyline

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
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JeanieC
Posts: 198
Joined: Tue Sep 21, 2010 11:47 pm

Re: nortriptyline

Post by JeanieC »

TracyB7777 wrote:I've noticed the last two times I've added 10mg of nortriptyline to my evening dose I don't sleep well, or hardly at all, for at least three or four nights. Anyone else have this oddity happen to them?
Yes, I tried switching to nortryptiline from amytript and was almost unable to sleep for a week, so I switched back to amytript.
Nortrip contains a stimulant although obviously it doesn't affect everyone on this thread that way. It's great that it helps your pain so much though.
Diagnosed with left side PN by Dr Renney, March 2010, after over 2 years of searching for help
Left TG Surgery, Dr Ansell, August 2010, failed to relieve pain
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TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: nortriptyline

Post by TracyB7777 »

Well, running on less than 5 hours of restless sleep (I'm usually an 8+ gal). While upping the Nortiptyline 10mg a week I've been reducing the Paxil by 10 mg, I'm thinking about adding it back in to the evening dose to try to sleep. Trying to hold out until Thurs when I see my DO.
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
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TracyB7777
Posts: 196
Joined: Mon Sep 27, 2010 3:42 am
Location: Vail, Arizona

Re: nortriptyline

Post by TracyB7777 »

So I'm completely off the paxil, have dropped the nortiptyline down to just 20mgs at night (none in the morning) and finally getting some sleep again. Neuro is still in Australia so I'm just going to keep dropping the does down until I'm off it. Told my family to speak up if my mood gets worse since I'll be off all meds at that point. Figure the meds aren't working (gabapentin, lyrica, tramadol, nortriptyline and others I took in the beginning), I'm just losing sleep and slowly losing my mind, so it was time to go off. BTW...I'm actually getting my memory back!!! YEAH!!!! :lol:
Have been dealing with burning pain since Jan 2010.
No sitting since April 2010.
Seen the following dr's: DO, GYN, Dermatologist, Accupuncturist,
URO GYN (his RN is the one who suggested the pain could be PN), Neurologist
Had ECG and MRI both inconclusive, only the SSEP said Pudendal reaction was abnormal and they lost that test result.
Saw Dr. Castellanos April 6, 2011. Next steps, MRI and botox. Having PT while waiting.-Botox denied, appealing to Insurance company now. :(
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HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: nortriptyline

Post by HerMajesty »

TracyB7777 wrote: BTW...I'm actually getting my memory back!!! YEAH!!!! :lol:
What's memory?...I forgot.

I dropped the nortriptyline back to 50m mgs. I was up to 100mg and the symptom control was fantastic but I started putting on weight like mad. When you eat a half can of tuna for breakfast, 2nd half for lunch, and a burger without a bun for dinner and gain a pound, something has got to give. 50 mg gives me pretty decent symptom control without the side effects. No more weight gain and what I did gain is slooooowly coming off. I miss feeling almost symptom free, but symptom free and normal are 2 very different things. on 100mg I did not feel normal at all. not only the chubby thing but also a general drugged out feeling.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Re: nortriptyline

Post by Lernica »

HerMajesty wrote: When you eat a half can of tuna for breakfast, 2nd half for lunch, and a burger without a bun for dinner and gain a pound, something has got to give.
Ha ha ha :lol: :lol: :lol: I know how you feel! These nerve pain drugs suck!
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
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Cora
Posts: 155
Joined: Tue Oct 26, 2010 12:14 am
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Re: nortriptyline

Post by Cora »

another thank-you for this detailed discussion. Just re-read this thread and once I am off the Vitamin "M", (which by the way, I am down to 5 mg 3x a day and believe it or not, it is still controlling my pain)... I may try the Nortriptyline and see how I tolerate that. Thing is right now my side effects are minimal and I am doing well on this very low dose- so, I shall stay on this dose a few more weeks and re-evaluate. But again, just wanted to thank all of you for posting such detailed discussions as they are really helpful.

Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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