Hi Kit,
You never shared with the forum what reasoning did Dr. Ansell gave you as regards to developing severe Penile Pain and no improvements at all after your surgery with him in 2004.
Best Regards,
Ali
x
Re: Penile Pain - Anybody with same symptoms? Recommendati
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Re: Penile Pain - Anybody with same symptoms? Recommendati
Speaking of penile pain, I called up one of the patients who I set up for surgery in Nantes, France a few days ago. He called me back yesterday. He was one who had terrible penis pain, couldn't have sex, was in a diaper due to incontinence. I hadn't spoken to him in quite some time.AliPasha1 wrote:Hi Kit,
You never shared with the forum what reasoning did Dr. Ansell gave you as regards to developing severe Penile Pain and no improvements at all after your surgery with him in 2004.
Best Regards,
Ali
His penis pain is completely gone, he can have good and regular sex with no pain whatsoever. Also, he and his wife got involved in foster care. He describes himself as 90% pain-free.
They ended up adopting 10 of these foster care children, 7 of them still live with them.
Thank goodness for Professor Robert and the traditional trans-gluteal surgery!
Greg
Had surgery in Nantes, France in 2001 with Professor Robert. I advocate physical therapy with PTs who specialize in the pelvic floor. I also advocate injections to help diagnose PN and I am in favor of having PN surgery to release the nerve when the diagnoses points to an entrapped nerve.
Re: Penile Pain - Anybody with same symptoms? Recommendati
Greg,
I asked that question from Kit and not you.So let him answer.
Ali
I asked that question from Kit and not you.So let him answer.
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
-
Pelvis Stressly
- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: Penile Pain - Anybody with same symptoms? Recommendati
Thanks for the warm words earlier in this thread Celeste (I've been travelling, without much net access, so haven't been able to reply sooner!).
Re: Penile Pain - Anybody with same symptoms? Recommendati
Ali, what exactly does "non-invasive surgery" mean? How do they do this surgery?
Also, I did had the 3Tesla MRI by Dr. Potter, and it showed dense scar tissue surrounding the pudendal nerve, and also scar tissue surrounding the dorsal nerve to the penis. This scar tissue diagnosis from the MRI is very confusing and frustrating, since I had pudendal nerve surgery in 2009 by Dr. Filler in LA to remove the very dense scar tissue left by the 2004 surgery by Dr. Ansell in Houston. And Dr. Filler uses Seprafilm around the nerves to prevent (supposedly) any subsuquent scar tissue.
At this time, I am waiting for a reply from Dr. Filler on his opinion of the MRI results. He may never reply. I will also probably send the MRI to Dr. Hibner to see if he thinks a 3rd surgery is wise. Since scar tissue removal did not help anything in 2009, I am not sure that removing scar tissue now would help. I think they may just not have found what the heck my base problem is. Maybe ny pudendal nerve is just damaged and cannot be fixed.
Also, I did had the 3Tesla MRI by Dr. Potter, and it showed dense scar tissue surrounding the pudendal nerve, and also scar tissue surrounding the dorsal nerve to the penis. This scar tissue diagnosis from the MRI is very confusing and frustrating, since I had pudendal nerve surgery in 2009 by Dr. Filler in LA to remove the very dense scar tissue left by the 2004 surgery by Dr. Ansell in Houston. And Dr. Filler uses Seprafilm around the nerves to prevent (supposedly) any subsuquent scar tissue.
At this time, I am waiting for a reply from Dr. Filler on his opinion of the MRI results. He may never reply. I will also probably send the MRI to Dr. Hibner to see if he thinks a 3rd surgery is wise. Since scar tissue removal did not help anything in 2009, I am not sure that removing scar tissue now would help. I think they may just not have found what the heck my base problem is. Maybe ny pudendal nerve is just damaged and cannot be fixed.
Kit Male age 74 Sitting pains started 10/2003. I have had about 14 years of pudendal nerve pain, including 3 surgeries by Ansell, Filler, and Hibner. None did any good. But finally, I discovered the DRG (dorsal root ganglion) neurostimulator. It was implanted on Dec 28, 2017. It has been a miracle to me. My quality of life has improved 95%, and reduced the pain by about 60%. Anyone with Pudendal pain should consider a DRG neurostimulator.
-
Pelvis Stressly
- Posts: 297
- Joined: Fri Sep 17, 2010 3:56 pm
- Location: Toronto
Re: Penile Pain - Anybody with same symptoms? Recommendati
I wouldn't say it's absolutely "non-invasisve" (it is still neurosurgery after all!). Think Ali just meant it's less invasive than the traditional TG version of the pudendal decompression surgery (all ligaments are spared for one thing, and it's just day surgery). If you scroll down to pianogal's second post on this page... http://www.pudendalhope.info/forum/view ... &start=110 you'll find links to Dellon et al's. two articles on the specifics of the procedure.Kit wrote:what exactly does "non-invasive surgery" mean? How do they do this surgery?
Hope that helps, PS.