How do I get refered?

Treatment options for UK & Irish members; including VHI & HSE criteria for funding and E112 Applications etc.
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candice-marie88
Posts: 19
Joined: Wed Feb 23, 2011 6:03 pm

How do I get refered?

Post by candice-marie88 »

I have suffered with PN problems for four years, however, I have never been reffered by my GP to any specialist, as they are completely unaware of my problem.

In the end I gave up hope and decided to stop working and see if my nerves healed on their own. They did improve over time, however, after a fall I am now back in chronic pain, which is also affecting other areas of my body, my vision and causing me a great deal of stress/anxiety and depression.

After recently visiting my GP and explaining the fall I had they are still non the wiser and consider my problem to be a yeast infection. I need help and fast, I cannot live like this anymore :(

How will I ever be refered?
MsRivers
Posts: 55
Joined: Thu Nov 11, 2010 11:48 pm

Re: How do I get refered?

Post by MsRivers »

Can you refer yourself to a neurologist who specializes in the lumbar plexus region of the body? That's the kind of neurologist I went to see. She recognized the condition however did not recommend surgery. She agreed to manage my pain for me. Eventually my PCP ended up managing my pain because the neurologist's office was too far for me to drive to. The neurologist did the script for the MRI & and MRN to Dr. Filler's office. I credit Dr. Filler for confirming my suspicion but did not proceed with his suggested treatment. I'm glad I didn't allow him to work on me because he really doesn't have a great reputation (from what I've read). If it wasn't for his MRN, I'd not be receiving long-term disability from my employee benefits. So, I don't regret shelling out $3,000 (cash) for the MRN. On the flip side; I met a woman in his office who had the PN release and isn't doing well, in fact she still has sever pain, and same symptoms from the PN. He now wants to do another block to her ganglion nerve.
PN pain post laproscopic vaginal hysterectomy. MRN diagnosed me with piriformis, sciatica, and pudendal syndromes.
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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: How do I get refered?

Post by Violet M »

Candice, some other UK patients have been discussing this on another thread. Click here: http://www.pudendalhope.info/forum/view ... f=27&t=969
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
gentle_artist
Posts: 12
Joined: Mon Feb 14, 2011 9:02 pm

Re: How do I get refered?

Post by gentle_artist »

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