Upcoming Seminar Dr. Bautrant in Australia

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AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by AliPasha1 »

Dear Violet,
The surgeries aren't successful because they aren't addressing all the points of compression.Why didn't Dr. Bautrant not address my dorsal nerve issue and even refused to do my right side saying that it is a myofascial reaction from the left.Now my sitting pain on the right is worse off than the left.I wish that I had something positive to report.

All the surgeons are claiming that they have done 600 + surgeries like Ansell,Robert,Bautrant etc and how can they forget how to decompress the branches of the Pudendal Nerve.
Some are butchering ligaments with no regard to the patients health and some are giving Optimistic numbers.It's a bloody circus. :lol:

But let's not deviate from the main subject and I believe those are valid questions that I posted and should be asked at the respective conference and Dr. Bautrant should answer them honestly.

Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
Mod8
Posts: 685
Joined: Thu Sep 02, 2010 2:18 pm

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by Mod8 »

A public forum on chronic pelvic pain and PN will be held on the evening prior to the Scientific Conference . See attached:
Feb17Programme(2).doc
(32.5 KiB) Downloaded 283 times
catherine a
Posts: 291
Joined: Sat Sep 18, 2010 4:46 am
Location: Perth Western Australia

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by catherine a »

I will be attending the upcoming seminar in Sydney Australia. Thursday 17th and Friday 18th Feb.2011

I have a few questions already from Ali. If anyone else would like to add their questions for Dr. Bautrant or Prof. Vancaillie can you please post them here. I will make a list and endeavor to get them answered by the doctors.
That also goes for Physios. and Radioligists.

I will do my best to get as much updated information as possible.

Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by ezer »

Great. I do have a few questions.

1) If you read Prof. Robert's papers he writes that cutting the ligament and the transposition of the pudendal nerve give a few more centimeters of slack to the nerve so it doesn't get entrapped again. Obviously the TIR surgery does not transpose the nerve. I would like to know what the TIR surgeons think about Prof. Robert's statement.

2) Prof.Robert does cut the nerve to the obturator internus now (not the obturator nerve) from what I understand. It seems to be a recent addition. I am post surgery and feel that my main problem is obturator spasms. It seems that this recent addition does prevent a continuation of spasms of the obturator internus muscle. Again, I would like to know if those surgeon are thinking about this extra procedure and if they feel there is same drawback doing it.

3) The Obturator nerve goes through the Obturator muscle in the obturator canal. The obturator nerve does innervate the adductor muscle. Some of us have leg pain. I would like to know if those doctors believe an entrapment or even just a compression of the obturater nerve in the obturator canal is possible.

4) Some doctors (Filler, Weiss) believe that the piriformis can be involved in the entrapment of the pudendal nerve. Is it an observation shared by Dr.Bautrant and Dr.Vancaillie?

Thanks.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
catherine a
Posts: 291
Joined: Sat Sep 18, 2010 4:46 am
Location: Perth Western Australia

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by catherine a »

Thanks Ezer . I'm compiling the questions and plan to forward them to the organizers of the conference so that the doctors will have time to read them over. I've also posted this same message under 'Australia & New Zealand ' section.

See attached.
Catherine
Questions for DR. Bautrant.doc
(21 KiB) Downloaded 249 times
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
scaredgal
Posts: 153
Joined: Tue Nov 30, 2010 3:24 pm

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by scaredgal »

Hi Catherine,

Can you add this to the list of questions:

Is it possible to decompress the distal nerves to the rectum?
If decompression of the distal nerves (rectal/perineal/clitoral) is possible, how is scar tissue prevented post surgery since it's such a small area? Would nerve wrap be used?
catherine a
Posts: 291
Joined: Sat Sep 18, 2010 4:46 am
Location: Perth Western Australia

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by catherine a »

Update on Pelvic Pain Conference:

The seminar was was attended by health professionals from around Australia who have an interest in chronic pelvic pain conditions. A huge turn out with the auditorium full to capacity and more sitting on the stairs down the aisles.
A public forum was held on the evening before with many questions from both men and women.

I managed to get some answers from Dr. Bautrant (quite difficult as he was extremely popular among the medical staff.) I had to grab him for a few minutes.

1 Transposing the nerve. Dr. Bautrant said that he does not touch the nerve itself but removes the problem of entrapment around it. He'd rather not touch the nerve due to possible further damage.

2. Cutting the nerve to the OI muscle: Dr. B said there are other treatments for obturator spasms. He said cutting the nerve to the OI is new research and has no data to date.

3. Entrapment of OI . Yes it is possible for the OI nerve to be trapped or compressed. Pain on the inside of the leg would indicate OI nerve issues.

4. Piriformis. Yes, the piriformis can be involved in the entrapment of the PN.

5. Falciform Process: is the fascia of the Alcocks Canal. He does not cut the Sacrotuberous ligament. This is why he does TIR approach so as to avoid cutting the Sacrotuberous ligament.

6. Dr. Aszmann & Dr. Dellon. Dr. Bautrant keeps in touch with these researchers and knows of their work on the decompression of the dorsal nerve. To date there is no data of efficacy and he has no plans to do this type of release. All of his surgeries are Alcocks Canal & SS ligaments as that is where the majority of entrapments seem to be found.

7. Young Children with symptoms of PN. Dr. B said that he would never do surgery on a young child. He has seen children in his clinic and all have been muscle related issues. Factors such as inappropriate toilet training when the child is a toddler. ie being punished for soiling their pants or from constant anger and verbal abuse by parents when the child wets or soils in their pants. Young children then develop a 'holding back' muscle tightness that develops into pelvic muscle dysfunction. Can then have PN symptoms. He also stressed that sexual abuse must be investigated.

The seminar was very well presented and it was great to see so many health professionals learn about PN. I think it will be moved to a bigger venue next year. I was asked to fill out a survey and I suggested that the seminar be taken to other cities around Australia & New Zealand.
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Narelle Jane
Posts: 5
Joined: Mon Feb 21, 2011 10:35 am

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by Narelle Jane »

Hi Catherine,
It was wonderful to be able to speak with fellow sufferers at the public seminar. My partner and I felt the evening was extremely valuable and provided us with pieces of the jigsaw of PNE which was quite reassuring. We were not originally aware of how so many of my physical symptoms are actually linked to this condition. I am going ahead with the trial stimulator, which I am hoping in the long term, will allow me to return to work. Thank you for taking the time to speak with Sam and I, we sincerely appreciated the sharing of your knowledge with us. Keep up the great work!!!!

Health & Happiness
Narelle
Hysterectomy/Ovaries removed at age 26yrs as a result of severe endometriosis. 19 yrs later diagnosed with PNE. Have tried botox injections, physiotherapy, osteotherapy and had PNE release surgery 14 months ago. Taking significant amounts of pain medication and will be trialling neurostimulator in upcoming weeks. Health & Happiness to all :-)
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by AliPasha1 »

Please refer to the following Post.
Last edited by AliPasha1 on Wed Feb 23, 2011 5:29 pm, edited 3 times in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Upcoming Seminar Dr. Bautrant in Australia

Post by AliPasha1 »

AliPasha1 wrote:Dear Catherine,
Thank You very much for calrifying all the questions for everybody else.I really appreciate all your help and efforts.
catherine a wrote:Update on Pelvic Pain Conference:
5. Falciform Process: is the fascia of the Alcocks Canal. He does not cut the Sacrotuberous ligament. This is why he does TIR approach so as to avoid cutting the Sacrotuberous ligament.
Dr. Hollis Potter found that my
Pudendal Nerve was entrapped in the falciform process of the Sacrotuberous ligament.That means that the nerve is still entrapped in my falciform process of the Sacrotuberous ligament and that's why he couldn't access it.I would be needing a redo PNE urgery with Dr. Hibner.THat's what i was afraid of.

6. Dr. Aszmann & Dr. Dell. Bautrant keeps in touch with these researchers and knows of their work on the decompression of the dorsal nerve wa[/quoter[/quote]

Dr. Hibner just performed a dorsal decompression surgery with Dr. Aszmann in AUstria and it wa valided that the dorsal nerve compression does exist.We are seeing a lot of dorsal nerve compression in a number of patients.
I apprecaite all the help once again.

Kind Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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