Pain with BM

[Faith]

I have just recently started having pain with BM's. I am not constipated. I go to the bathroom everyday and my stools are soft. But when I feel the urge to have a BM I start to feel burning/tingling and as I go it burns and then after I go it burns for anywhere from 10 minutes to an hour. Does anyone else have this problem? I don't understand why it has started all of a sudden. It seems like as time passes I just continue to get worse and get new symptoms. Is there any treatment to help with this? I eat tons of fiber so again constipation is not an issue for me. The burning is internal, but also around the rectum.

[Emily B]

Yes, I have this too. Even if stool is soft, it still puts pressure on the PN as it passes by.

Emily B.

[A's Mommy]

Dear Faith,

I definitely can sympathize with you. While I once (long time ago) did not have this problem, it became a problem as my entrapped nerve got more and more inflamed (I was entrapped in the alcock's canal on the left and am still entrapped although at a lesser degree in the same place on the right). Towards the end, before my surgery, it actually felt like a knife as stool passed through the rectum. Then, there would be residual burning afterwards. Now, I use Miralax and 200mg of docusate every night to keep stools soft and I still get a bit of burning but it's more pelvic floor muscle spasms as the problem now. I no longer feel the stabbing knife as stool passes through the rectum on the left. Sometimes, if a stool is harder than normal, I will feel a knife like pain on my right. More of the problem is, since my nerve is regenerating on the left, it is still ultra sensitive and so bowel movements of any kind and 90% of the time with urination I have burning pain in my urethra as the urine comes out. This is all related to the PN.

Have you been put on Hibner's appointment cancellation list? If not, I would suggest you do that. You need relief ASAP. If you have an extra tight pelvic floor, he may want to put you through Botox trials before you potentially have surgery. He is very careful as to whom he does surgery on. Maybe you can find a doctor closer to where you live that would do Botox on you. Sometimes, even with an entrapment, Botox can help a bit. I read this somewhere in the vaults of tipna.

I wish I could be of more help, just ice and heat, and try to take a muscle relaxant (I use oral Valium).

A's Mommy

Praying for you

[Karyn]

Hi Faith,
Yes, I have the same type of pain as you do with BM's. Also like you, I don't have hard stool or constipation problems. It just plain hurts when the colon is full, stings as it's coming out and it feels like my rectum is raw/being stabbed with lots of little needles. I understand this is difficult to grasp, but PN(E) seems to be a progressive condition for the majority of us. I'm going on year 4 now and my symptoms are piling up, with nothing diminishing. I recently took a mental year in review and was surprised to realize how much less I'm able to physically do, compared to last year and the year before that and the year before that.
I'm sorry you're going through this and even more sorry I don't have any solutions to this particular problem.
Warmest of regards,
Karyn

[Lernica]

Yes to all symptoms. I get relief by applying a lidocaine\neurontin ointment on my rectum before and after bms. Very helpful.

[Faith]

Thanks for your comments ladies. It helps to know I'm not the only one. I know PN is a progressive condition, but it just amazes me how people have lived 10 years+ with this and I've only had it for 11 months (well maybe a little over 2 years if you count my time during pregnancy, but I dont' think they were necessarily related) yet my PN has progressed so quickly. Within 3 months of not being able to sit I had myofasical trigger points and pain all over my body and couldn't hardly stand due to all the pain in my feet. 6 months later I had to start working only a few hours a week and had no life outside the home hardly. Maybe it's because I have a toddler so I am bound to put more pressure on my nerve with all the lifting and bending I do caring for her. And the crazy thing is I started all the conservative treatment ASAP. In fact I was in PT when it all started! Such a mystery...

Have you been put on Hibner's appointment cancellation list? If not, I would suggest you do that. You need relief ASAP. If you have an extra tight pelvic floor, he may want to put you through Botox trials before you potentially have surgery. He is very careful as to whom he does surgery on. Maybe you can find a doctor closer to where you live that would do Botox on you. Sometimes, even with an entrapment, Botox can help a bit.

I am on Hibner's cancellation list. I need to call back more frequentyly to make sure nothing has changed though. I see a urogyno 3 hours away who does Botox, but she doesn't think I will benefit from botox because I had trigger point injections and they did nothing and my pelvic floor muscles aren't horribly spasmed. But I don't know.

wish I could be of more help, just ice and heat, and try to take a muscle relaxant (I use oral Valium).

I ice a lot. I want an Rx for Valium supositories because I have taken Ativan (similar to Valium just shorter acting) and it does help some just makes me REALLY sleepy. So maybe the supository would be less systemic. Does the oral valium not make you drowsy?

I get relief by applying a lidocaine\neurontin ointment on my rectum before and after bms. Very helpful.

This sounds like it would be helpful. Good idea. I do have lidocaine ointment I guess I could try that, but it isn't just external burning it's internal so I don't know if it would help as much.

[Faith]

So is it common to have loose stools with PN too? Or at least do others struggle with that on here. I've been struggling with loose stools for a while now.

[A's Mommy]

I have heard that loose stools or even fecal incontinence can happen with PN.

This disease is so darn complex.

[Lernica]

Constipation is more of an issue for me. I rarely have loose stools.

[Amanda]

The most important thing to remember is to not get constipated......thats when the spasms to go are huge.....I eat a lot of fibre and even so some foods make things much worse like beans etc.....but if i dont eat enough veggies then I am in big spasms every morning. Normally I eat copious amounts of veggies and seeds in my bread to keep the system flowing..if not the spasms are terrible with intense burning after a BM...arghhhh!!