How many doctors have you been to?

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: How many doctors have you been to?

Post by Faith »

Thanks. This makes me feel like I'm not the only one :)
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
Faith
Posts: 697
Joined: Fri Oct 15, 2010 5:15 pm

Re: How many doctors have you been to?

Post by Faith »

wendy7 wrote:It is a shame that everyone has gone to see this many doctors and I bet that almost everyone who posted here was self diagnosed as PN and not diagnosed by a doctor. :shock: Take care,Wendy
Amen to that! I've known since the first month I started having this pain I had PN, but it's taken this long to get the doctors on board to get the treatment I want and not the treatment they think I need! I always wanted to be a doctor, just not like this! :roll:
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: How many doctors have you been to?

Post by pianogal »

Amen again to Wendy7's comment!!!
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
pomegranate
Posts: 157
Joined: Sat Sep 18, 2010 3:12 am
Location: Oklahoma

Re: How many doctors have you been to?

Post by pomegranate »

wendy7 wrote:It is a shame that everyone has gone to see this many doctors and I bet that almost everyone who posted here was self diagnosed as PN and not diagnosed by a doctor. :shock:

Take care,
Wendy
I completely agree. I feel really fortunate that I seem to have a small list. My PN was dxed by a PT and confirmed by a urogyn.
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
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