DRG STIMULATION

[Ray P.]

I just went to see Jason Pope, and he has nothing but good things to say about DRG. I found that Kit had good luck with it. Has anyone else had this procedure done for PNE?
Any comments about procedure will be welcomed.

Here is is website:

https://evolverestorativecenter.care/


Thanks, Ray

[Violet M]

Ray, the link doesn't work. Where is this doctor located?

[Ray P.]

Santa Rosa CA
https://evolverestorativecenter.care/

[Ray P.]

I have not posted on this site for some time, but I am surprised I have not gotten any feedback on this subject.
Is there another website people are posting on?

Ray

[lizbet]

DRG with 4 leads has not given me significant pain relief. Implanted after 28 years of Pudendal Nerve Entrapment and another 12 years after surgery stripped the scar tissue binding the nerve to my sacrotuberous ligament (which helped immensely with acute pain but left my PN extremely damaged). When I continually reported my disappointment about the DRG after multiple adjustments by Abbott reps over the last 2 years, they finally told me that I could regard it as a souped-up TENS unit that could only perhaps disrupt part of the pain signals, not eliminate them. If they’d been straight with me about that before—instead of doing such a selling job of promising how it would change my life—I never would have gone through the psychological evaluation, trial, implantation, another surgery to reposition the battery after it moved, all the inconvenience of regulating it through an iPhone rather than a simple controller, and fears of something happening if I needed an MRI or unrelated emergency medical treatment (it’s supposed to be turned off). Now the battery’s threatening to erode through my skin, just another symptom of my Ehlers-Danlos that predisposed me to PNE/PNN in the first place…something the doctor promised would NEVER happen even though I told him I had had problems in the past with implanted spinal fusion surgery hardware. So it may have to be removed anyway. Am really pretty disgusted with the whole DRG process. Still can sit for only about a half hour in a comfortable chair at a time and must sleep on my stomach and lie prone on the floor to use my computer. No return to movie theaters, dinner parties, book groups, community meetings, flying on planes, church services, riding in buses or cars…anything requiring normal sitting. The only saving grace is that altho' my life is severely limited, I have fortunately always been able to walk and do standing activities without pain, so I’ve been able to walk the dog, garden, do building projects around my house, etc.

[Violet M]

Thank you for telling your experience with DRG, Lizbet. I'm sorry to hear that it did not work for you. I would be interested to hear how it goes for you if you decide to have it removed.

Violet