Hi friends,
I think that I have pudendal neuralgia and I would like a diagnosis and treatment, I'm just struggling with who. I live in Santa Ana, California. I have HMO insurance, requiring me to get a referral. I did get one from a doctor with who I discussed previously my symptoms (chronic pelvic pain, clitoral atrophy, vulvodynia, vaginismus, all for 4 years), the urologist did not even hear of this condition.
Please help me, what should I do?
Help with getting diagnosed
Re: Help with getting diagnosed
Hi,
The only current pudendal neuralgia doctor we have listed in Southern Cal is Dr. Aaron Filler but I'm sure there are more. If you go to the list of PT's on our website, you could find one near you and call them to see if they could recommend a doctor in your area because they often work with the local doctors.
https://www.pudendalhope.info/usa-physical-therapists/
Hopefully some of our forum members will also be able to help you with some names.
Violet
The only current pudendal neuralgia doctor we have listed in Southern Cal is Dr. Aaron Filler but I'm sure there are more. If you go to the list of PT's on our website, you could find one near you and call them to see if they could recommend a doctor in your area because they often work with the local doctors.
https://www.pudendalhope.info/usa-physical-therapists/
Hopefully some of our forum members will also be able to help you with some names.
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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findinghopeforpn
- Posts: 2
- Joined: Thu Aug 01, 2024 1:22 am
Re: Help with getting diagnosed
Thank you very much, Violet, it is greatly appreciated. I will be sure to give this a look. I see that you have recovered 99% from PGAD, I am so happy for you. I have experienced symptoms of PGAD before, but it seems to come and go, for some reason. It feels relieving to know I’m not alone.
Vulvodynia, vaginismus, and clitoral atrophy for 4 years, Off and on symptoms of PGAD.
Re: Help with getting diagnosed
It can be pretty scary to have all of the symptoms you are describing, but hopefully you can find a provider who can help you. I would be interested to hear how things go for you.
Violet
Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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valentino88
- Posts: 13
- Joined: Thu Jun 06, 2024 7:41 pm
Re: Help with getting diagnosed
Sorry to hear that! You might want to try asking your primary care doc for a referral to a specialist who's more familiar with pelvic pain. You could also do some research to find local docs who've dealt with pudendal neuralgia before. And don't forget to reach out to pain management clinics in Santa Ana to see if they can help.
Re: Help with getting diagnosed
Hi FindingHope,
I don't know of any doctors in your area. But, Karen Brandon is a physical therapist in So Cal who is very knowledgeable about pn. I think she is in the Kaiser HMO network.
April
I don't know of any doctors in your area. But, Karen Brandon is a physical therapist in So Cal who is very knowledgeable about pn. I think she is in the Kaiser HMO network.
April