So confused….

[capricorn91]

Thank you.

I’ve booked another appointment to go and see him. To test me again for PN and to have some nerve blocks to stop the pain. I will ask for some medication as well as I can’t live like this…nerve pain just eats you inside….its horrible

I have 4 months to reduce the pain as the new baby will be here. I just want to be that fit father who can enjoy his kids and not be scared to exercise with them and have fun without worrying for days if you’ve over done it you’re in pain for the next week….its a killer

You're welcome, yes, this nerve pain is extremely debilitating, i'm also still trying to find some treatment that will help, but it's a difficult situation with long waiting times to see specialists and also the costs of specialists/pain clinics.

Hopefully you will find something that helps you, let us know how the nerve block works for you.


....

[PainNoPain]

Do you guys know anyone who has responded well good spinal cord stimulation or Dorsal root ganglion stimulation for nerve pain , pudendal nerve pain? They do them here in the UK, I spoke to the hospital today, they’re expensive but if I can get my life back to enjoy my kids I will go anything….

The last 10 years I’ve pushed myself sometimes bought a stationary bike, went on big walk and hikes during covid, swam 3-4 days a week, stretched done strengthening and the pain got bad….but this time it’s another level and it’s that kind of pain that it’s terrified me as it feels like it’s not just going to calm down anytime soon. It’s already been over a couple of weeks and no change…

[Violet M]

Two people I can think of are Kit, who had DRG neurostimulation and Amanda, who had SCS neurostimulation. You can read their stories in the neurostimulation section of the forum, or do an advanced search in the upper right corner of this page to search for their posts. From what they said, it's not a cure, but it gives them a much better quality of life.

Violet