failed cystectomy and still pain?

[Marky]

Hi everyone,
i'm a male and i have chronic pelvic pain for 6years.
i had a cystectomy and removing prostate for painfull bladder syndrome but it fails to relief me from pelvic pain. my surgery gived me also chronic nerve abdominal pain what i'm thinking is ACNES / abdominal wall pain.

my pain is in my urethra left i think /penis and rectal pain 24/7 , i also have scrotal left pain , when walking i feel sharp burning and shooting pain in my urethra or penis.
i have also rectal tenesmus , the feeling i need to poop all the time and a heavy feeling in my anus/rectum, like something is stuck there or my anal sphincter is spasming. and difficults with bowel movements like constipation and diarrhea and pain after a bowel movement.
they tested my pelvic floor and told me i have levator ani syndrome/complex pelvic pain syndrome.
I also had a postive skin biopsy for small fiber neuropathy anf a history of +10 years for left laryngeal neuropathy find on EMG and i have POTS syndrome to.

this week i read that pudendal neuralgia is possibe a disorder of the small unmyelinated C fibers affecfing both somatic and autonomic nerves.
WDT and pinprick give a simple and fast evulation for pudendal neuralgia , but those test only react with C fibers and delta A fibers ,

so if you have small fiber neuropathy , like me and have chronic pelvic pain , do you have pudendal neuralgia to?
my urology told me to go to a pain clinic to get a holistic approach... do i have pudendal neuralgia ??

[stephanies]

Hello Marky,

I don't know about much about SFN. Would that typically cause symptoms just in the distribution of one nerve (PN) or typically be more widespread?

Stephanies