Wanted - information for new book

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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Wanted - information for new book

Post by Celeste »

Please be cautious about sharing personal information, friends. The forums have been getting spammed a lot lately.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
RJR
Posts: 157
Joined: Mon Nov 15, 2010 11:26 pm
Location: Northern VA

Re: Wanted - information for new book

Post by RJR »

You can count me in.
RR
Cyclist till perineal pain onset R side (Apr'08). Dx with PN (Aug'09). Lyrica gave 30% pain reduction. Potter MRI (Oct'10) validated at surgery with Dr Hibner (Nov'10) - found nerve attached to scarred STL. Now sitting 10 hrs/day vs 1 hr/day pre-op. Surgery video = http://www.youtube.com/watch?v=6FDwana6SQU

Deep neuropathic burning pain flares have been gone since surgery...Grateful to Dr Hibner.
Ray P.
Posts: 248
Joined: Mon Sep 20, 2010 5:22 pm

Re: Wanted - information for new book

Post by Ray P. »

I got pne from bike riding.
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Charlie
Posts: 214
Joined: Fri Sep 17, 2010 11:48 pm

Re: Wanted - information for new book

Post by Charlie »

Celeste wrote:The forums have been getting spammed a lot lately.
I agree
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
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