Pressure Specified Sensory Device

PNMLT, EMG, SSEP, and other Nerve function testing.
The different techniques, results and opinions.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Pressure Specified Sensory Device

Post by nyt »

I do know that Dr. Conway does surgery on the ilioinguinal but if you also have entrapments of the iliohypogastric and/or genitofemoral and/or lateral cutaneous femoral I don't know if Dr. Conway can address all those nerves. It is rare that the ilioinguinal is injured in isolation if it is due to a surgical procedure. I know Dr. Dellon will address the ilioinguinal and iliohypogastric during the same surgery but don't know if he would do decompressions or neurectomies on the other nerves during the same surgery. In other words, if all four nerves needed surgery can he do all four nerves during the same surgery? I will find that out during my visit. Once I have researched the different appoaches for these surgeries I will post again after my visit to Dr. Dellon.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Karyn
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Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Pressure Specified Sensory Device

Post by Karyn »

nyt wrote:I am a patient of Dr. Hibner's and Dr. Howard's but I have multiple neuropathies and am looking for a way to try and narrow down which nerves I should have surgery on and which one's I should not, and minimize the number of nerve blocks. Also, for additional surgeries beyond pudendal I need ie ilioinguinal, genitofemoral, a different approach for the obturator nerve, or femoral decompression surgery .
Hi Nyt,
Aside from the obvious, physical pain you're experiencing, could you please tell me how you know you have problems in these areas? I'm very concerned I have more than PN issues and am afraid something will be overlooked. I asked Dr. Potter to re-review my MRI, with specific regards to the ilioinguals (and a couple of other areas) because the EMG I had in NH did record abnormal activity. This was her response:

The MRI demonstrated that you have scarring of the pelvic floor surrounding portions of the pudendal nerve, particularly on the left. Whereas there is no gross scarring in the vicinity of the ilioinguinal nerve, this does not mean that your symptoms are not real in that distribution. The imaging tests are limited by spatial resolution and sensitivity to depict what may be very subtle changes in nerve signal. At the end of the day, we treat the patient, not the MRI, but the study of 9/13/10 did demonstrate that you have entrapment of nerves, as stated.

Based on the nerve anatomy pictures I've looked at, my symptoms or areas of pain run along the same areas as yours.
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Pressure Specified Sensory Device

Post by nyt »

Karyn, it is based on location of pain, abnormal neurosensory testing by Dr. Conway, physical exam, and some nerve blocks. I had a genitofemoral nerve block on the right side which worked great for some of my residual groin pain but did nothing for the numbness, tingling, and burning on the mon pubis. I see Dr. Howard in 2 weeks and will ask about the ilioinguinal blocks. We have discussed it in the past but I have not had any to date.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Pressure Specified Sensory Device

Post by Karyn »

Thanks, Nyt. I've actually had a couple of series of bilat ilioingual blocks. Got maybe about an hour of decreased pain, but that was about it.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
PN-SufferVT
Posts: 87
Joined: Fri Oct 22, 2010 8:46 pm

Re: Pressure Specified Sensory Device

Post by PN-SufferVT »

NYT,

Please describe the areas of pain or symptoms for the different nerves you speak of... i.e ilioinguinal nerve, femoral and so on....

Thanks!
PN started in June 2009, quickly pain level went to 10. PN probably caused from long hours sitting in car, followed by weightlifting/sports daily. My pain level are now daily between 1 and 4. I do not know if I have true entrapment, but definitely know I have neuralgia of the PN.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Pressure Specified Sensory Device

Post by nyt »

Take a look at this link to a paper by Dr. Dellon because it has a picture and good short description of where the nerves innervate. It does not show obturator nerve which will give pain in the groin and on the anterior medial portion of the thigh as far down as the knee.

http://dellon.com/publications/ipns.bro ... te.2pp.pdf
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Pressure Specified Sensory Device

Post by Karyn »

Wow! This was a tremendous help! Upsetting and exciting to be able to visually match up these areas of pain.
Thank you, NYT!
Warm regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Pressure Specified Sensory Device

Post by nyt »

Karyn, one of the challenges with pelvic pain is that the nerves can recruit other nerves and that is one of the reasons why it can be so difficult to pinpoint the origin of the problem. Even though they show a clear map in Dr. Dellon's publication there is overlap and some publications show some variations in areas of innervation compared to his publication. Also, Dr. Antolek gave a great talk at the International Urogynecology meeting in August 2010, available online to watch, where he stresses the importance of treating all neuropathies because if they aren't you won't get the fullest recovery possible. He talks about a couple of patients that their pudendal symptoms weren't markedly improved until he treated the ilioninguinal neuropathy. So much self-education!
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: Pressure Specified Sensory Device

Post by Karyn »

Thanks, NYT. What you said about Dr. Antolaks presentation makes sense.
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
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Charlie
Posts: 214
Joined: Fri Sep 17, 2010 11:48 pm

Re: Pressure Specified Sensory Device

Post by Charlie »

This is a brief article explaining Pressure Specified Sensory Device tests

http://ezinearticles.com/?A-Look-at-Pre ... id=3496957
Tried numerous medications as well as a long period of myofascial physical therapy combined with meditation/relaxation. My pelvic floor muscles are now normal and relaxed on exam ( confirmed by many Pelvic floor PTs) yet my pain remains the same. Also have intense leg pain. Deciding on next treatment.
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