PN from Bladder Sling
PN from Bladder Sling
I have Pudendal and Obturator neuralgia from a bladder sling I had put in 10 years ago. Pain started 2 years ago and it has taken that to be diagnosed. I underwent, what I was told, a total removal surgery only to be told later the surgeon did not go far enough to get all the mesh out. I finally made it to another specialist who will remove the remaining mesh and do Botox and a nerve block. I have read horrifying stories on this blog caused by Botox and blocks. I’m so scared and nervous now with this upcoming surgery. I don’t trust doctors after what I’ve been through. Is there anyone out there with my circumstances that has had success or failure with these procedures? I would be so thankful if anyone could advise.
Re: PN from Bladder Sling
Hi Mom3,
You could see a pudendal surgeon to get his take on it. Could you see Dr. Hibner in Phoenix? I know a lot of urogynecologists remove mesh, but it may be ideal to have it done by a surgeon who is knowledgeable about pn, and I think Hibner does do that. You could call his office or review his website to check for sure. I do think botox works for some people but I think only when the problem is muscle. And I suppose the steroid block is supposed to reduce inflammation. If you stay with this surgeon, I would be sure to ask a lot of questions about why s/he is doing the block and the botox and what the risks are and what the success rate is for each procedure for patients like you.
April
You could see a pudendal surgeon to get his take on it. Could you see Dr. Hibner in Phoenix? I know a lot of urogynecologists remove mesh, but it may be ideal to have it done by a surgeon who is knowledgeable about pn, and I think Hibner does do that. You could call his office or review his website to check for sure. I do think botox works for some people but I think only when the problem is muscle. And I suppose the steroid block is supposed to reduce inflammation. If you stay with this surgeon, I would be sure to ask a lot of questions about why s/he is doing the block and the botox and what the risks are and what the success rate is for each procedure for patients like you.
April
Re: PN from Bladder Sling
Hello,
I was diagnosed with PN from hand stitched cytocele rectocele repair. I did have injections and botox with Dr. Hibner on April 15th along with other procedures.
Though i was made to sign paperwork that all the risks and benefits were discussed with me, they were not. So if you get the risks and benefits discussed with you or anyone out there has had the risks and benefits discussed with them, please share. I had an appointment before my surgery and i was told that is the time to discuss risks and benefits and all questions, but it was with student doctor who did not answer any of my questions and all about signing forms that anything could happen to you, you could end up worse, and you accept these conditions and they have been fully discussed. I went ahead because, I had already flown to Phoenix on borrowed money, and so far definitely worse with significant complications. Please share if these issues are discussed. thank you
I was diagnosed with PN from hand stitched cytocele rectocele repair. I did have injections and botox with Dr. Hibner on April 15th along with other procedures.
Though i was made to sign paperwork that all the risks and benefits were discussed with me, they were not. So if you get the risks and benefits discussed with you or anyone out there has had the risks and benefits discussed with them, please share. I had an appointment before my surgery and i was told that is the time to discuss risks and benefits and all questions, but it was with student doctor who did not answer any of my questions and all about signing forms that anything could happen to you, you could end up worse, and you accept these conditions and they have been fully discussed. I went ahead because, I had already flown to Phoenix on borrowed money, and so far definitely worse with significant complications. Please share if these issues are discussed. thank you
Re: PN from Bladder Sling
Hi, I just had my bladder sling fully removed by Dr. Hibner. I have pudendal neuralgia and Im looking for a pain management doctor in California. Does anyone have any recommendations? I’m also interested in what pain relief medications my fellow PN suffers find helpful. I’m on gabapentin which is helpful but has several unpleasant side effects, ( like massive weight gain), I was wondering if anyone has found any other medication or combos that work better for them. Thanks and God’s Blessings to everyone
Re: PN from Bladder Sling
Hi Mom3,
I hope your surgery recovery is going well. I am tapering off of gabapentin and it is awful to taper off of. I also have learned more about how it affects the brain, so I am very eager to get off of it. So, you may want to taper off of that med (it sounds like you don't like it anyway). Step down by 10% of your dose per month, so you'll be stepping down by smaller amounts each time. It comes in liquid form and in 100 mg capsules, so you can combine those to get precise doses. I have found both amitriptyline and nortriptyline helpful. I've alternated between the two. I've also been on both tramadol and nucynta and alternated between them. I take it only once a day to reduce my tolerance, and I switch from one to the other when I do develop some tolerance to the one I'm on. You'd probably want to start on tramadol since it's less powerful.
April
I hope your surgery recovery is going well. I am tapering off of gabapentin and it is awful to taper off of. I also have learned more about how it affects the brain, so I am very eager to get off of it. So, you may want to taper off of that med (it sounds like you don't like it anyway). Step down by 10% of your dose per month, so you'll be stepping down by smaller amounts each time. It comes in liquid form and in 100 mg capsules, so you can combine those to get precise doses. I have found both amitriptyline and nortriptyline helpful. I've alternated between the two. I've also been on both tramadol and nucynta and alternated between them. I take it only once a day to reduce my tolerance, and I switch from one to the other when I do develop some tolerance to the one I'm on. You'd probably want to start on tramadol since it's less powerful.
April
Re: PN from Bladder Sling
I'm sorry you're in California - it is a terrible state for pain relief. I am on morphine, Lyrica, and Keppra and it's not working. PN is a nasty disorder and I have a very severe case.Mom3 wrote:Hi, I just had my bladder sling fully removed by Dr. Hibner. I have pudendal neuralgia and Im looking for a pain management doctor in California. Does anyone have any recommendations? I’m also interested in what pain relief medications my fellow PN suffers find helpful. I’m on gabapentin which is helpful but has several unpleasant side effects, ( like massive weight gain), I was wondering if anyone has found any other medication or combos that work better for them. Thanks and God’s Blessings to everyone
Re: PN from Bladder Sling
Consider joining our group: ATIP - we're fighting the crazy CDC regulations. Many have been harmed and a number have committed suicide from lack of pain relief.