Heading out for some fun

Here is a place for social chats with special attention to support and non medical discussions. We need a place to chill out, where we can distract from our pain and enjoy lighter moments, share a joke or funny moment with others.
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wendy7
Posts: 60
Joined: Sat Sep 25, 2010 4:21 pm
Location: Rhode Island

Heading out for some fun

Post by wendy7 »

Hello my fellow PNer's.

I really do miss you guys. I'm doing great and I hope to continue to do well, as time goes on. I've got 2 boyfriends. LOL. So, I'm having a good time, enjoying time with my son, when he is not with his father. I think I can say that out of everything, the loss of my marriage was the worst thing that came from PN, with which, I have also lost some time with my son, because he is with his father 3 days a week.

But, I am up and around and trying to have a good time. I just want you guys to know, that even though I am not here, if anyone wants to speak with me, by phone or email, please let me know. I would be MORE than happy to speak with anyone.

I think I may have some "survivors guilt", about being better and doing well, but I want to let others know, that it is always important to remember that there always is hope. When I was at my lowest point with PN, I just could not do it anymore. It sucked the life right out of me. Now, that I am better, I am doing many things. I kind of feel like a kid in a candy store, just doing things that I had not been able to do, in almost 5 years. It's an amazing feeling. Like I have my life back and I want to continue to enjoy myself.

Don't get me wrong, I still have pain, but nothing compared to what it was. I'm actually driving now. :D But, wanted to just check in with you guys. I have alot of reading to do here. It's been a long time and I hope to get to some posts on Monday. But, I got to go, my date is at the door!

Take care,
Wendy
Unlilateral Surgery 9/27/07 - Dr. Conway
Redo Unlilateral Surgery 10/15/10 - With Dr. Hibner AND Dr. Conway
Results - Fantastic!
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Celeste
Posts: 574
Joined: Sat Sep 18, 2010 2:24 am
Location: central Ohio

Re: Heading out for some fun

Post by Celeste »

Wow Wendy, best update ever! 8-) I couldn't be happier for you. Two boyfriends...you're like, my hero. :lol:

Regarding your marital loss, I have to say it takes two to tango. The pain wasn't your fault, and neither was your husband's reaction. It sounds like you have a good coparenting plan, but I'm sorry for the daily time that you miss out on with your son. It sounds like you're all making the best of the situation, and I know that being so loved, your son is going to be fine.
PNE as a result of childbirth, 2002. Treatment by the Houston team, with neurosurgery by Dr. Ansell in 2004. My left side ST and SS ligaments were found to be grown together, encasing the pudendal nerve.

I am cured. I hope you will be, too.

There are no medical answers on the forum. Your only hope is to go to a doctor. I was very happy with the Houston team, which has treated the most PNE patients (well over 400), more than any other US provider.

http://www.tipna.org
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AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: Heading out for some fun

Post by AliPasha1 »

Great News and vvery Encouraging new.I am going to have a redo with Dr. Hibner on the 25th of April,2011 after my failed surgery with Dr. Bautrant.


Long live Dr. Michael Hibner. :D

Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
Contact:
Contact A's Mommy

Re: Heading out for some fun

Post by A's Mommy »

Wendy,

So happy u are back on the forum!! I hope you had a very happy holiday season and new year! I'm glad you are having fun too! :-) :-) :-)

You were a big help to me when I talked to you. After you catch up here on the forum, you'll see how I've been faring, or I'll try to give you a buzz soon.

With love,

A's Mommy

PS: Hugs to your little boy :-)
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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