What does the long term hold for PN sufferers

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CureSeeker
Posts: 21
Joined: Sun Jan 16, 2011 3:28 am

Re: What does the long term hold for PN sufferers

Post by CureSeeker »

Hi

I am a male PN sufferer. I wanted to ask if a someone like me can get married as sexual relations has been non existent all my life. The PN pain obviously makes it very difficult to derive any pleasure - let alone conduct normal relations. It has hindered me living and working as per normal. That is why I'm wondering if anything can happen whilst I have this - lets face it - possibly for the rest of my life.
It wouldn't be fair on the lady anyway. But prospective ladies would stay away anyway when they learn I have this condition.

I've had this condition from about 14 years old - I am now 41. My siblings are both married and they are both 9 and 10 years younger than me. I just don't know what to do. I have found it next to impossible to do a job so I am going in to business for myself. But even that takes time to set up - and I have been relying on my parents support so far. So that is another hindrance ofcourse. But I wanted to know if anyone has been married with this and is it worth me pursuing this avenue.

Thanks
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: What does the long term hold for PN sufferers

Post by AliPasha1 »

HI,
Have you explored all the treatment options of cure/improvements of this disease.e.g 3 Tesla MRI Testing ,Surgery,Physical therapy etc.Your first objective should be to get well.

Regards,
Ali
Last edited by AliPasha1 on Mon Jan 17, 2011 6:37 pm, edited 3 times in total.
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
sgrandy
Posts: 63
Joined: Fri Sep 17, 2010 3:13 pm

Re: What does the long term hold for PN sufferers

Post by sgrandy »

I second what Ali says...have you pursued all potential treatment options? If not, there may be something that you haven't tried that might help you to the point where sexual relations are possible again. I'm married and my husband married me despite my issues. I am able to have sexual relations although not as frequently as usual when I am in a flare-up but it still happens and I have a variety of things that work for me to be able to find the experience enjoyable while also minimizing the side-effects of having sex. Don't forget that there is a lot more to relationships than just sex and there are ways of pleasuring someone without full intercourse (won't get graphic with this!). It basically takes a bit of experimentation and open communication between partners so, no, I don't think that having this condition (or a lot of other health conditions) necessarily precludes you from intimacy and having a loving relationship.
CureSeeker
Posts: 21
Joined: Sun Jan 16, 2011 3:28 am

Re: What does the long term hold for PN sufferers

Post by CureSeeker »

Thank you both Sgrandy and Ali.
Well I am trying to pursue treatment but it is all rather frustrating at the moment as, although my current GP is helpful,
it seems the hospitals like to get rid of me as fast as possible. Further, my GP referred me to a Pain Management clinic
about 2 years ago but I have never heard from them. But I will visit my GP again this week to be referred somewhere else.
Last edited by CureSeeker on Wed Jan 19, 2011 11:55 am, edited 1 time in total.
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: What does the long term hold for PN sufferers

Post by calluna »

If your GP has already referred you to a Pain Clinic, that long ago, and you have heard nothing, then it seems very likely that one of the letters has gone astray. Waiting lists are never that long!
CureSeeker
Posts: 21
Joined: Sun Jan 16, 2011 3:28 am

Re: What does the long term hold for PN sufferers

Post by CureSeeker »

Well I saw my GP yesterday and he will be referring me to a PN specialist - at long last lol.
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