Hi Ellie,
I am so sorry to read all you have been through these last few years. It is so frustrating to not be heard by doctors we have put our trust in. I hope you are able to get pain medication and that it makes you more comfortable. It is definitely a hostile climate for chronic pain patients — difficult to find a doctor willing to prescribe medications, difficult to get insurance to approve them, and difficult to find a pharmacy to fill them. Keep us posted!
Stephanie’s
past few years of hell
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stephanies
- Posts: 692
- Joined: Mon Oct 25, 2010 3:07 am
Re: past few years of hell
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
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Olmscheid80
- Posts: 18
- Joined: Thu Dec 07, 2017 1:59 am
Re: past few years of hell
The pain clinic prescribed 15 mg of morphine twice a day with 5mg of percoset in between. It is helping some, some days. I tried to have my gp prescribe them so we wouldn't have to drive a couple of hours each month for refills.. Not a chance. No one here at the clinic will agree with it. At least I am able to get them... 3ooo of gabapentin daily helps as well... I spend a lot of time lying with ice.. It is a shame what is happening with people that really need medication... I think the decompression surgeries made things worse with scar tissue... We try so hard , spend so much money chasing around , just trying, trying.. Happy Holidays to all.. Ellie
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Olmscheid80
- Posts: 18
- Joined: Thu Dec 07, 2017 1:59 am
Re: past few years of hell
Must be getting old and forgetful.. I posted 3 times now what meds I am on... 
Re: past few years of hell
Hi Ellie,
I'm so sorry for all the trouble you've had getting medications and treatments. As stephanies said, it is a hostile climate for pain sufferers who need pain medication. I read some of your earlier posts, and it sounds like you had a stimulator for a while. Did it not work? If so, I wonder if it's worth trying it again with a new doctor? I've heard so many good stories about stimulators in the past year or so, both on here and on a couple of facebook groups I'm in, that it seems like it's a treatment trying and even re-trying. There are multiple places to put the leads and there are multiple times of stimulators, so I think there are a lot of variables that could affect its success. And, of course, I think some doctors have more experience with this than others. Sk8rcruz just posted about her success with a stimulator with a doctor in Oregon, and Kit had success with a doctor in Iowa.
Keep us posted.
April
I'm so sorry for all the trouble you've had getting medications and treatments. As stephanies said, it is a hostile climate for pain sufferers who need pain medication. I read some of your earlier posts, and it sounds like you had a stimulator for a while. Did it not work? If so, I wonder if it's worth trying it again with a new doctor? I've heard so many good stories about stimulators in the past year or so, both on here and on a couple of facebook groups I'm in, that it seems like it's a treatment trying and even re-trying. There are multiple places to put the leads and there are multiple times of stimulators, so I think there are a lot of variables that could affect its success. And, of course, I think some doctors have more experience with this than others. Sk8rcruz just posted about her success with a stimulator with a doctor in Oregon, and Kit had success with a doctor in Iowa.
Keep us posted.
April