Successful Neuromodulator trial

[Lucyinthesky]

Hi everyone

I am so pleased. I had a week long trial of the SNS and as soon as it was switched on I had blessed relief I was so excited going into the surgery. It was really interesting because the incision wounds hurt more than the pure all nerve pain! I was able to walk go out for dinner twice during the week. And I did it with no SR Tapentadol I played with the setting constantly which was fantastic because I could respond to my pain levels. In all honestly the pain was barely noticeable. Within 3 days I had decided to go ahead with the permanent surgery. I couldn’t be happier because it changed my life so muc. As soon as I was ‘unplugged’ the pain descended and I have had constant painaround the 8-9 out of 10. Prof Vancaille, Liz and Denise Diddy ha wonderful job. In hindsight I wish I did it earlier but it was worth the wait. If you are thinking of trialling, I really suggest having a go. But also you have to be positive d that it will work (which is really hard because we all get trapped into thinking the pain is with us for life.

Thanks for letting me share.

Lucy

[April]

oh, that's great, Lucy!! So this was a sacral nerve stimulator, right? Thanks for the report!

April

[Lucyinthesky]

Sure is April. Surgery can’t come soon enough - because the pain sucks especially when I know I am so close to being significantly pain free!

[Lucyinthesky]

Since I had the trial leads removed, the pain has come crashing back. I can’t sleep and am taking huge quantities of panadol, neurofen and tapentadol in SR and IR form. The energy that I had from the trial is long gone, and I am
Fatigued and hurting. The good thing is that I know it works, but I have to wait another month before the implant is done. I thoroughly recommend anyone who is thinking about having it done to go and have the trial. I feel so close to my life changing. So that’s my mantra to get me through the awful condition.

[Violet M]

I can imagine the wait seems like forever, Lucy. Keep fighting....you will get through this.

Violet

[Lucyinthesky]

Thanks Violet. The insomnia is not helping either!

[Grammy]

Do you know the name and type of stim trial you had?

[Lucyinthesky]

Hello everyone. I had the permanent implant inserted on Friday, and switched on Saturday. I’m happy to report that the stimulator is working and the only pain I feel is from the wound sites. Let’s keep it that way!

[Grammy]

Could you tell us the name of your sns and the lead placements thanks

[Violet M]

Hey, that's great, Lucy! Glad this is working for you.

Violet