Without a diagnosis

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Mradkova
Posts: 5
Joined: Thu Oct 11, 2018 12:59 pm

Without a diagnosis

Post by Mradkova »

Hello,
I have been in constant pain and without a diagnosis for two years.
The pains began shortly after a surgery of bartholinitis in the left.
A week after her, it hurt me inside the little pelvis on my left and the whole leg.
I feel the pain as a source somewhere in the vagina.
From MRI there is only disk hernia of L5S1 that has been removed.
But the pain continues.
I have not done T3MRI.
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Violet M
Posts: 6832
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
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Re: Without a diagnosis

Post by Violet M »

Are there any doctors or PT's in your country who treat PN who could give you a proper diagnosis -- to determine whether you have PN or not?

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Mradkova
Posts: 5
Joined: Thu Oct 11, 2018 12:59 pm

Re: Without a diagnosis

Post by Mradkova »

No, here in Bulgaria there are no doctors familiar with this disease.
After 2 years of touring by any specialist, I never heard that there is such a nerve at all!
Neurosurgeons here are also unaware ...
And I have all the symptoms, the pain, the burning.
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Violet M
Posts: 6832
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Without a diagnosis

Post by Violet M »

What about PT's? Sometimes they are more aware of this disease than the doctors are. A PT figured out my diagnosis.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
chenonceau
Posts: 39
Joined: Sat Oct 08, 2016 1:42 pm

Re: Without a diagnosis

Post by chenonceau »

Hi Mradkova,

you should consider going to see a specialist from another country that is specialized in the matter. The nearest guy I have heard of near Bulgaria is probably Dr. Tibet Erdoğru in Istanbul.
Testicular pain started Jan '15 - off by may '15
Back Pain + Pain when seating Jan '16
Loss of sensation when urinating Mar '16
Urinary Retention Aug '16
Diagnosed PNE Sept'16 - 2 Nerve blocks Nov '16
Diagnosed Myofascial Syndrome March '17
Self-cathing since summer '17
Bilateral Decompression Surgery (Dr. De B., France) September '18
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