I wanted to start by thanking the team for the hardwork and dedication that goes into this website and all the members for sharing their stories and experiences. It was through this website that I was able to find some very helpful doctors.
I apologize in advance if this is a bit of a jumble. So far it has been 7 years living with PN. My symptoms started after a traumatic childbirth with complications - which also left me with a case of Post Traumatic Stress Disorder. I'm currently at a point where I'm feeling really low and isolated (again).
I've never been able to return to work full time - always putting in part time hour or less. I have had many times during flares in the past where I had to go down to something ridiculous like 2 hours a week - but due to the recent flare my healthcare team has had me go off work completely and has suggested I don't return at all to the line of work I was doing as it exacerbates my PTSD symptoms - which in turn exacerbate my PN symptoms. Prior to my injury I loved my job and I still have phenomenal coworkers and I'm feeling a deep sense of grief.
I've tried botox, pelvic physio, nerve blocks, too many medications to count, osteopathy, sex therapy, yoga therapy, and chiropractic care. Some have helped - some haven't - but I'm at the point where I am so sick of medical/rehab appointments. In the past seven years I have not gone longer than 2 weeks without some kind of appointment. I'm back in an intensive bit of appointments due to the current flare up. I desperately want a life outside of med/rehab appointments and pain.
I do have a doctor right now who is working to find a solution...but the process has been so slow moving and I'm feeling really frustrated. I think he fails to understand that the months of time in between appointments (due to scheduling on the hospital's side) are months and months of life that I'm losing to pain and depression.
Anyhow - long story short I could really use some hope right now - hence why I'm here
