Cryoablation

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
jaxi123
Posts: 505
Joined: Thu Sep 30, 2010 12:35 am

Cryoablation

Post by jaxi123 »

Has anyone had good results from this now being done in Phoenix?
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Cryoablation

Post by nyt »

I thought in Phoenix they were doing pulsed radio frequency ablation and not cryoablation. Have they changed? As far as I knew Dr. Prologo was one physician I knew doing cryoablation.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
jaxi123
Posts: 505
Joined: Thu Sep 30, 2010 12:35 am

Re: Cryoablation

Post by jaxi123 »

Phoenix recently stared doing cryobalation
kathyd
Posts: 699
Joined: Mon Dec 20, 2010 8:48 pm

Re: Cryoablation

Post by kathyd »

Hi everyone,
Does anyone know if cryoablation-(I'm not exactly sure what that is,)
Is being done the NJ, NY, Metro area?
Or pulsed radio frequency?
My pain doc is pretty good, but wants to stick with one thing at a time,
which for now is the Pain pump. I'm not sure for various reasons how much it's helping
me so I'm always interested in other options as well,
if can get him to consider it. When I try to bring up these things he always goes back to
the "one thing at time idea". I understand but want to make sure I'm doing all I can.
Thanks for any info.
Kathy
stephanies
Posts: 686
Joined: Mon Oct 25, 2010 3:07 am

Re: Cryoablation

Post by stephanies »

PRF is being done for pudendal pain at the University of Maryland. I think it is part of a study. The radiologist is Dr. Howard Richard.

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
make-it-stop
Posts: 68
Joined: Tue May 10, 2011 6:53 am
Location: Chicago, IL

Re: Cryoablation

Post by make-it-stop »

Jaxi, is this the Iovera brand cryo treatment you're talking about? I know that's been done on a couple nearby nerves (ilioinguinal and genitofemoral?) with good results but haven't heard of it being done on pudendal yet. Is it Hibner's office you're talking about?
5/11: burning in all areas innervated by PN; self-diagnosed PN
5/11: pelvic floor PT (PT #1) did not help after 2 sessions; she gave up
12/11: Kalinkin MRI doesn't show anything significant
12/11: Consult with Hibner; agreed with PN diagnosis, likely due to tight pelvic muscles
12/11 - 12/13: Tried 4 other pelvic PTs - tbh, they weren't great - no results
1/14 - 11/15: pelvic PT with PT #6 (better results, feel about 30% better after 2.5 years of PT)
Related conditions: MPS, S.I dysfunction
jaxi123
Posts: 505
Joined: Thu Sep 30, 2010 12:35 am

Re: Cryoablation

Post by jaxi123 »

Dr Kay Radiologist at St Joseph's is now doing pudendal cryoablation.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Cryoablation

Post by nyt »

Dr. Prologo does cryoablation of the pudendal nerve and he is at Emory. I know one individual who went to him and they are doing very well. They have been slowly weaning off their medications and able to increase sitting times. Not cured but huge improvement.

Good to know that Dr. Kay is now doing cryoablation. When I asked Dr. Hibner if they would do cryoablation as I did not want to try PRF he said he didn't think so because the hospital had just invested all the money in the PRF equipment but that was maybe 2 years ago when I talked with Dr. Hibner about it.
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
jaxi123
Posts: 505
Joined: Thu Sep 30, 2010 12:35 am

Re: Cryoablation

Post by jaxi123 »

Can anyone report having seen Dr Prologo at Emory? He has performed over 50 pudendal cryoablations.
jaxi123
Posts: 505
Joined: Thu Sep 30, 2010 12:35 am

Re: Cryoablation

Post by jaxi123 »

Cryoablation kills the nerve so how does the patient control bodily functions( going to the bathroom)??
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