Dr.Hibner's 2010 article on Pudendal Neuralgia

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ezer
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Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by ezer »

With permission from the publisher for Pudendalhope.
Hibner.pdf
(1.16 MiB) Downloaded 763 times
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
stephanies
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by stephanies »

Thanks for posting, very informative.
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
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Violet M
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by Violet M »

Thanks Ezer. I know you went to a lot of extra work behind the scenes to get permission to post this. ;)
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Alex
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by Alex »

Thanks for letting me know about it.Dr.Hibner always write really informational and helpful articles and i really like reading them.I hope it will be very informational article written by him..
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Cora
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by Cora »

Ezer, Just want to thank-you again for posting this article. I am seeing a pain specialist tomorrow and this will be immensely helpful. Once again, thanks to the collective intelligence and support on this site. I know I participate in spurts, but I'm always checking in, and appreciate everyone here.

Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
pianogal
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by pianogal »

thank you ezer! we should add this article to the one violet created to build awareness on pne. given along with the handout, it provides a doctor's opinion that doctors would trust and take more seriously.
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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Violet M
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by Violet M »

Pianogal, I was already thinking of using it. I'm going through some other literature too -- looking for what will support the document.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Faith
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by Faith »

Thanks so much ezer for posting this. This is such great concise info on PN! It really helps people get the whole "process" of diagnosis and treatment.
-11/08 vulvodynia began around conception of first & only pregnancy
-3/10 sacral/sitting pain began after SIJD manipulation
-Progressive widespread pain- central sensitization
-PT, meds, injections, botox, ESWT = debilitated.
-5/12 Potter MRI - scarring of left ST, coccygeous & posterior alcock
-12/12 - left FAI/labral hip tear surgery
2014-2019 managed w/ gabapentin, massage, and lifestyle mod
2020 - big flare up
www.thepurposeofpain.blogspot.com
JODDY
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by JODDY »

ezer, thanks for posting Dr. Hibner's article on Pudendal Neuralgia. On page 152 of Dr Hibner's article it says,patients with symptoms of Pudendal Neuralgia for greater than 10 years are less likely to recover because of the long duration of damage of the nerve,especially when compared to their counterparts with pain of less than 10 years of time. I have had Levator Spasms for 19 years and I think the spasms are caused by Pudendal Nerve Entrapment. Does this mean that PNE surgery would not help me,since so much time has passed?
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Violet M
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Re: Dr.Hibner's 2010 article on Pudendal Neuralgia

Post by Violet M »

Joddy, there are people who've had pain for 15-30 years who have gotten better. It's impossible to predict the outcome of surgery with any certainty. Keep your courage up. ;)
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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