PNE surgery withProfVancaille

[ElizaM]

Hi everyone. I'm new to this site. I am having surgery in July with Dr Vancaille for my left sided pudendal nerve compression. I would be interested in hearing from others who have had this surgery with him and what to expect in regards to recovery and if the surgery was successfu. Thanks

[Violet M]

Eliza, I wish you all the best with your surgery. You can do a search on Prof. Vancaillie's name in the search bar in the upper right to read what patients have posted about him. If I remember correctly, I think bindy15 and ness70 posted their results of surgery with him.

Violet

[ElizaM]

Thank you Violet. I will try this. Still learning my way around the site. How do you add the details below your name about how you got PNE and what you have tried etc? Wonderful to read that you have healed from this condition. Gives us all hope. Thanks again.

[Violet M]

Eliza, to add a signature that shows up on every post, go to the User Control Panel (upper left) and click on the Profile tab and then on the left menu click on Edit Signature. Type in what you want it to say and submit.

Violet

[Newdad]

Hi Eliza,

I had surgery Jan 2014, 18 months later almost 95% better. Back to normal sitting at work, back playing sports that are hard on the pelvis (golf etc) and dont even think about it anymore. So good that I havent seen a physio in a year and 6 months since I last saw my massage therapist.

My results of surgery are in this forum, I was looking for a quick fix/recover, the Prf said look at 12 -18 months to see significant results, he was right, dont rush it.

[stephanies]

Glad to hear you are doing so well!

Stephanies

[ElizaM]

Thanks for replying. Wonderful to hear that you are doing so well. Had my surgery last Friday and at the moment I'm in much worse nerve pain. I'm hoping this is normal to have a 'flare' after surgery. Did you feel worse for a while before you got better?

[Rosemary]

i have not had the surgery Eliza so can't comment on your flare of pain but remember others posting about how to recover using Dr Conways advise - if it is of any help here is the post - it is under the US section.

http://www.pudendalhope.info/forum/view ... =50&t=5197

Rosemary X

[ElizaM]

Thanks so much Rosemary

[bindy15]

Hi Eliza,
For the first time in about 5 years I sat down and read my PN journals and was reminded vividly of the nightmare it was for me. My story is probably old and in the archives by now...last month I stopped Gabapentin/Neurontin which I had clung onto as it had been part of my life for almost ten years!
YES I am PN free, I am extremely grateful that PN decompression with Prof Vancaillie was successful for me. I would say probably 2-3 years post op was the turning point for me. The first year post op was a roller coaster of better worse better worse..... all the best for your surgery, there is hope and keep believing that.
Hang in there
Jude