Does anyone have PGAD in vagina,not clirorus!? (sorry)

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
LindseyD
Posts: 165
Joined: Thu Dec 04, 2014 7:31 pm

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by LindseyD »

Violet M wrote:Lindsey, the only doctor who would manage my Lexapro rx. was a psychiatrist. My gyn would not do it. He psych doctor concluded I had no psych problems but was willing to manage the med anyway. I'm trying to remember. I think he also ordered the clonazepam. Some GP's or even nurse practitioners might be willing to manage these types of meds -- or a pain management doctor.

Violet
So Clonozopan is what reduced symptoms for you? Ive read everywhere to stay away from ssri's to help with this symptom but I guess thats not true for everyone. Guess it just deoends on the person. Wish there were a list of meds to be told to not try so Idknow what not to use. By thw time I started pgad trazodone was prob still in my system although Id slowly come off of it. But since I also have IC,and my anxiety/tress is through the roof, its hard to say what caused it for me since I had the ssri,bladder,and stress.
User avatar
Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by Violet M »

Lexapro reduced the PGAD symptoms. Clonazepam reduced the shocks that kept me awake at night. It allowed for a few hours of sleep. I've read you should avoid trazadone for PGAD because it has a history of causing priapism in males. http://www.rxlist.com/desyrel-side-effe ... center.htm
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
LindseyD
Posts: 165
Joined: Thu Dec 04, 2014 7:31 pm

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by LindseyD »

Its felt worse today. Its a deep inward vaginal feeling deep inside my vagina. I cry and cry idk what else to do. Ive been off Trazodone a lil over a month,it took me a long time to come off it. Im so afraid of what meds to be willing to try to help this. I dont trust medication anymore. I came off trazodone slowly and celexa successfully and slowly last spring before I ever got sick. I was given a 30 day supply of xanax but now im slowly ciming off of it. I owe drugs to some of my health problems today. Is there numbing gels to insert vaginally??
User avatar
Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by Violet M »

I tried 5% lidocaine internally but it didn't really do much. Too much lidocaine can affect your heart rate. Some women use valium vaginal suppositories or B&O suppositories. The thing that worked best for me for that deep vaginal feeling was ice balloons. You can fill balloons or condoms, freeze them, and insert them vaginally. If you push them up to the side where the nerve goes across the ischial spine it really helps numb the nerve. You can try different sizes and see what works best. You might have to slide them in and out a few times until you get used to the cold. It's a little painful at first but once you adjust to the cold it helps like nothing else. Often it was the only thing that allowed me to get to sleep.

Violet
Last edited by Violet M on Sat Jan 31, 2015 10:17 pm, edited 1 time in total.
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
LindseyD
Posts: 165
Joined: Thu Dec 04, 2014 7:31 pm

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by LindseyD »

Violet M wrote:I tried 5% lidocaine internally but it didn't really do much. Too much lidocaine because it can affect your heart rate. Some women use valium vaginal suppositories or B&O suppositories. The thing that worked best for me for that deep vaginal feeling was ice balloons. You can fill balloons or condoms, freeze them, and insert them vaginally. If you push them up to the side where the nerve goes across the ischial spine it really helps numb the nerve. You can try different sizes and see what works best. You might have to slide them in and out a few times until you get used to the cold. It's a little painful at first but once you adjust to the cold it helps like nothing else. Often it was the only thing that allowed me to get to sleep.

Violet
BandO supposotories,arent those the ones you put up your rectom,or can you insert them vaginally? I want to try the baloons im just so afraid of having anything in my vagina and just adding to it. How do you know whefe to push it? I fgured you just put it up there the way it would ve during sex and leave it? Is it bessed to fill the condom fully to the size your husband is? Violate idk what Im going to do.mentally,emotionally I mean. This is such an evil condition I am afaid.
User avatar
Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by Violet M »

I don't know what size would work best for you. I guess you could try several different sized balloons or condoms but probably best to start small and see how that goes.

I think B&O's can be inserted vaginally but check with your doc or pharmacist to be sure.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
LindseyD
Posts: 165
Joined: Thu Dec 04, 2014 7:31 pm

Re: Does anyone have PGAD in vagina,not clirorus!? (sorry)

Post by LindseyD »

Bertie wrote:Your pelvic floor will be more than likely to tight, so you need to learn the opposite of pelvic floor exercises, and learn to drop and flop the pelvic floor look it up on google.at one point I was having a mini orgasm every time I moved my left leg, walking the dogs for an hour was awful, the mini orgasams have now stopped and I am left with a fullnes/aching/arousel in the vagina.......but it is better than it was a year ago. I am afraid there are no miracle cures. There is a closed FB group that I find very helpful.
Hey Bertie, is your pgad because of your PN? Have you tried any medication that you found yo be very helpful,or have you seen.a dr that specializes in pgad? Im going to Dr.Echenberg in PA in April,I hope he can help this....
Post Reply

Return to “WELCOME CENTER”