Any doctors that can treat PGAD?

Hysterectomy, Ovary Removal, SIJD, Piriformis Syndrome etc
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Rane
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Joined: Tue Jul 29, 2014 9:36 pm

Any doctors that can treat PGAD?

Post by Rane »

Please move this if it's in the wrong spot.

I know a lot of people have pelvic pain problems and that their PGAD can get better if the source is treated. Thing is, as you may already know, I think my PGAD stems from getting off of an SSRI. Are there any doctors that you know of who can treat PGAD by itself?
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Violet M
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Re: Any doctors that can treat PGAD?

Post by Violet M »

Dr. Irwin Goldstein in San Diego?
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Hopeful845
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Re: Any doctors that can treat PGAD?

Post by Hopeful845 »

Dr. Robert Echenberg in Bethlehem, PA. He's also working a few days a month in NYC. He's very bright and compassionate.
DoubleEdgedSword
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Re: Any doctors that can treat PGAD?

Post by DoubleEdgedSword »

Dr Gordon in Toronto is my neurologist. He has a few residents and one of them prescribed me a topical cream with lidocaine and gabapentin in it, that works better than anything else I've been prescribed. It helps with both arousal and pain.

Wishing you luck in finding somebody who can help you.
On the road of discovery to see what is causing my PGAD.
blightcp
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Re: Any doctors that can treat PGAD?

Post by blightcp »

I have also used a cream that had gabapentin, lidocane, amitryptline, and ketamine.

The ketamine is a big player in nerve pain, as it shuts down the sensory nerves but not the control nerves. It may be worth it to see if you can get a compound with ketamine. I applied this directly to the scrotum as the hypersensitivity was so intense I was on 5mg of dialuded every 6 hours for the pain. Within a day the pain was down significantly.
PN by sedentary job and commute
Treated for IlioInguinal pain 2008-10
PT by Dr. Conway's team | 3 PN blocks @ Elliott in Manchester USA
TIR 2010 and TG by Dr. Conway in May of 2012 uncovered nerve damage, declared surgical failure in May of 2014
PT and bed rest continues
Employer refused accommodations in 8/13, now in the disability war.
Sacrial Stimulator 9/14 by Dr. Ross Boston MA
Anesthetic pain pump trial 3/16/15 by Dr. Ross
LindseyD
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Re: Any doctors that can treat PGAD?

Post by LindseyD »

Does any of those creams yall mention work for the arousal feeling inside the vagina,not just the clitorus? also, im confused on some drugs like amntripteline (im sure I mispelled that) because SSRI drugs can cause pgad, yet dont they also try and treat it with this medication which IS an ssri??
stephanies
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Re: Any doctors that can treat PGAD?

Post by stephanies »

Amitriptyline is a tricyclic antidepressant, not an SSRI.
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
LindseyD
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Re: Any doctors that can treat PGAD?

Post by LindseyD »

Can Amitriptyline cause pgad or make it worse??
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Violet M
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Re: Any doctors that can treat PGAD?

Post by Violet M »

I've never heard of it causing PGAD or making it worse but it's hard to make any guarantees when it comes to drugs.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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