New here, 18 and extremely worried

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
travelisdangerous
Posts: 35
Joined: Fri Oct 10, 2014 6:15 am

Re: New here, 18 and extremely worried

Post by travelisdangerous »

Just thought I'd post an update and would be great to hear some more insight/advise.

So my condition seems to change constantly. My sitting discomfort and pain has definitely gotten somewhat worse but not considerably. This is probably due to the fact I'm home from uni for Christmas so I've barely been sitting, only to go to the pub for a bit with friends.

My urine leakage on the other hand has gotten quite a bit worse. Before there was just a small amount of dampness but now my underwear is a lot more damp and is pretty difficult to ignore. It just leaks constantly. The leaking is usually less if I'm walking rather than sitting/lying down.

Something interesting that happened, (not sure if this further shows it could be pn) I had a small fall on my bottom. Very small fall from a chair that was very low. That night my right leg around my knee ached a lot. Then in the morning I had this buzzing / vibrating feeling where I fell for about a week. Very annoying, made it very difficult to sleep. Luckily this calmed down but does occasionally return. It also made my bottom feel very uncomfortable, like a burning feeling. Luckily this also calmed down after about a month.

My doctor was absolutely convinced it was prostatitis and gave me medication. The medication has done nothing so I think he is now referring me to a urologist.

Would just being careful and hoping that it will heal be enough? Really not sure what do to with myself right now.
User avatar
Violet M
Posts: 6829
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: New here, 18 and extremely worried

Post by Violet M »

It's hard to predict what will happen if you just rest and wait for healing to take place. It really depends on what the underlying pathology is.

I know you probably don't want to wear any type of pads at your age but it might be a temporary solution to the underwear problem. Lots of elderly people (including men) have to rely on pads/pullups, etc. and while it might feel humiliating at times it might also help you relax a bit as to whether any leaking might show. In the meantime you can search for an accurate diagnosis and treatment.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
travelisdangerous
Posts: 35
Joined: Fri Oct 10, 2014 6:15 am

Re: New here, 18 and extremely worried

Post by travelisdangerous »

I now seem to have acquired constant penis pain. I previously had no problems with pain in penis but after masturbation last Thursday (I was careful too) I now have a constant pain on the left side of my penis head.

Is this likely to be permanent? As I haven't got one good night of sleep since.
User avatar
Violet M
Posts: 6829
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:

Re: New here, 18 and extremely worried

Post by Violet M »

Sorry, I don't think anyone can answer whether the new pain is going to be permanent.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
User avatar
ezer
Posts: 689
Joined: Sun Sep 19, 2010 6:53 am

Re: New here, 18 and extremely worried

Post by ezer »

travelisdangerous. It looks like you do not have bacterial prostatitis. You will likely be diagnosed with non-bacterial prostatitis by the next urologist.
Frankly, 100% of the male population had sex while not fully erect in their lifetime and did not get PN because of it.

Please remember what I posted after your first few posts:
Patients with abacterial prostatitis/chronic pelvic pain syndrome (CPPS; category III in the 1995 National Institutes of Health prostatitis classification system) have the same symptom complex as those with chronic bacterial prostatitis. The chief symptom reported by patients with abacterial prostatitis/CPPS is pain. Genitourinary symptoms include perineal, penile tip, testicular, rectal, lower abdominal, or back pain.
Patients can also have irritative or obstructive urologic symptoms such as frequency, urgency, dysuria, decreased force of the urinary stream, nocturia, and incontinence. Other symptoms are a clear urethral discharge, ejaculatory pain, hematospermia, and sexual dysfunction.

Many patients with abacterial prostatitis have emotional strife and some psychological difficulties (ie, socially, sexually, or both). Patients should be questioned with regard to their overall social adjustment. Stress level is important because stress is responsible for increased tension of the pelvic floor and the internal urinary sphincter, resulting in the symptoms of prostatitis.
Don't get obsessed with PN. Look at the last paragraph from the quote. Non-bacterial prostatitis (assuming that is your diagnosis) is manageable/curable but it won't be instantaneous. Try to see a PT for temporary relief. Read Dr. Sarno that mentions prostatitis as an emotional/stress disorder. Injections or a scalpel will most likely not fix your problem.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
Post Reply

Return to “WELCOME CENTER”