Hey everyone, I haven't been on here in a while. A lot has happened. It turns out I have a C Diff infection and tried to treat it with antibiotics but it came back. I don't know for sure, but I think it was causing a lot of the bad feelings down there (your intestine becomes inflamed, pushing against everything). Anyway, I now have very bad neuropathy everywhere. I have heard of someone getting ETC therapy for PGAD on this board. I know it didn't help the person involved, but I know it can potentiality work for neuropathy.
Does anyone know where I can find a specialist? I think it was someone in Atlanta but I can't find the thread.
Anyone know where to find Electroconvulsive Therapy?
Re: Anyone know where to find Electroconvulsive Therapy?
Wow, we must have read our minds. I was about to post about this, asking for opinions. I've been doing so so myself, just taking 1 gabapentin pill at night, and daily exercise, 3 days swimming, 3 days running. I want to say I feel better, its not that I've gotten rid of the pain, just that Its much more manageable now that I'm more active and I'm more focused in other stuff. I can sit for longer periods, and somehow I've got the pain to be felt more in the "background".
My neurologist, who I really trust, and its head director of neurology at one of the best hospitals here, saw all my studies and has convinced me that there's no physical evidence that I have some sort of peripheral nerve entrapment whatsoever. I do seem to have a sensory issue with the nerves on the area, hyperalgesia, but the cause is still what we need to find out..
Then, a couple of weeks ago we had family visit. My wife's sister and her husband came by. Her husband was telling me about his sister had a similar experience of chronic low back pain, unable to sit for over a year..she became depressed. Then she just tried ECT in a psychiatric hospital, per recommendation of a neurologist, and she's having great results. I called her myself to talk about it, they do it with anesthesia. She's had a very very significant relief out of this therapy. Side effect is some short memory loss, although she told me that has not been much significant for her. She assured me she severely depressed, bedridden with this pain, not able to leave her house at all. She tried all the meds we know, pregabalin, gabapentin, etc, with no results. Her symptoms were low back pain, pelvic pain in general, while sitting with episodes of sciatic like pain, muscle spasms, etc etc. By the sound of her voice I kind of sensed this was truly a breaktrough for her that I've been doing some research myself. There are some documented studies out there with promising results. After my failed botox in piriformis attempt, my neurologist recommended to meet him again in November, and not try anything else but gabapentin and my exercise to allow any botox effects to subside. I will ask him about this then.
My neurologist, who I really trust, and its head director of neurology at one of the best hospitals here, saw all my studies and has convinced me that there's no physical evidence that I have some sort of peripheral nerve entrapment whatsoever. I do seem to have a sensory issue with the nerves on the area, hyperalgesia, but the cause is still what we need to find out..
Then, a couple of weeks ago we had family visit. My wife's sister and her husband came by. Her husband was telling me about his sister had a similar experience of chronic low back pain, unable to sit for over a year..she became depressed. Then she just tried ECT in a psychiatric hospital, per recommendation of a neurologist, and she's having great results. I called her myself to talk about it, they do it with anesthesia. She's had a very very significant relief out of this therapy. Side effect is some short memory loss, although she told me that has not been much significant for her. She assured me she severely depressed, bedridden with this pain, not able to leave her house at all. She tried all the meds we know, pregabalin, gabapentin, etc, with no results. Her symptoms were low back pain, pelvic pain in general, while sitting with episodes of sciatic like pain, muscle spasms, etc etc. By the sound of her voice I kind of sensed this was truly a breaktrough for her that I've been doing some research myself. There are some documented studies out there with promising results. After my failed botox in piriformis attempt, my neurologist recommended to meet him again in November, and not try anything else but gabapentin and my exercise to allow any botox effects to subside. I will ask him about this then.