redo

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hopeman
Posts: 102
Joined: Tue Jul 08, 2014 4:10 am

Re: redo

Post by hopeman »

Karyn

Sorry
I did not get my physician oversease response. My country physician know how to blocks. But do not the the effect of blocks. I should tell him. Thank you give me so much information associated with block
Hopeman
hopeman
Posts: 102
Joined: Tue Jul 08, 2014 4:10 am

Re: redo

Post by hopeman »

Laramarie

Did Dr. Hubner. cut your falciform process of STL?


hopeman
User avatar
Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: redo

Post by Karyn »

Hopeman,

I can understand your frustration about the lack of response from your surgeon. Unfortunately, follow-up care and open lines of communication between patients and their surgeons are often a rare commodity, post-op.
hopeman wrote: My country physician know how to blocks. But do not the the effect of blocks.
Is there anyone else local to you who may have more expertise in this area?

Best wishes,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
hopeman
Posts: 102
Joined: Tue Jul 08, 2014 4:10 am

Re: redo

Post by hopeman »

I had left GT surgery. The surgern judge through that my right side PN is not compressed. However,after my right perineum sometimes have pain, thought little. I do not know whether such right ride is transfer from left side or just belong to right side. If it belong to right, I might have secondary surgery for right side.

Hopeman
hopeman
Posts: 102
Joined: Tue Jul 08, 2014 4:10 am

recovery

Post by hopeman »

After seven month left side TG surgery. I would like to post my condition.
My pain is decreasing. Sometimes I can sit one hours without cousion. Now my pain is focus on the perinuum, both side. Somedays, there is no any pain when I stand, walk, and lie down. Sometimes I have little pain when walk, stand and lie down.
Totally, I can not sit. I my day life I avoid sitting as can as possible. One thing bother me is that my right side is not performed by the surgeon surgery, however, I have right side perineal pain. I do not whether to have the second surgery, or just to wait and see whether the right pain will be cured.
I do not know whether will I be cured. I should wait and be patient.

Sincerely

hopeman
Laramarie

Re: redo

Post by Laramarie »

Hopeman
I looked at my operative report and it does not mention anything about the falciform process. Only that my STL was repaired.

Lara
stephanies
Posts: 692
Joined: Mon Oct 25, 2010 3:07 am

Re: redo

Post by stephanies »

Hopeman,

I understand that you had surgery on your left and your pain on that side is decreasing. Did you have surgery on the right yet? Are you thinking about a second surgery on the right?

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
hopeman
Posts: 102
Joined: Tue Jul 08, 2014 4:10 am

Re: redo

Post by hopeman »

Stphenies

My right is not very painful. I have not decide whether to operate right side.

Why did you switch from Filler to Campbell. I do not know what is Dr. Filler surgery technique.
It tends that his surgery is different TG surgery.

Hopeman
stephanies
Posts: 692
Joined: Mon Oct 25, 2010 3:07 am

Re: redo

Post by stephanies »

Hopeman,

You are looking into a second surgery for your left despite decreasing pain because you think the nerve is not completely decompressed, is that correct? How high are you pain levels now?

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
AliPasha1
Posts: 739
Joined: Fri Sep 17, 2010 2:35 pm
Location: New Orleans,Louisiana

Re: redo

Post by AliPasha1 »

Hopeman,

You should go back to Professor Aszmann and have the right side done.As far as your question about Pelvic Instability is concerned,it is a known fact that severing both the Sacrospinous and Sacrotuberous ligaments have led to SIJD/Lower back pain.However,surgeons who continue to sever both the ligaments continue to deny this fact.

I had my last PN surgery by Tibet Erdogru and I was butchered.My right side sciatic nerve was damaged and I now I am having terrible back pain near my Sacro-Iliac joint.To my knowledge ,my SacroSpinous ligaments were severed.This pain started about seven weeks ago.It is a terrible pain.
I am very unhappy because of this lower back pain because that was the only reason that I never had TG surgery.

Kind Regards,
Ali
Diagnosed for PNE by Dr. Jerome Weiss in June 2007.Started PT with Amy Stein in NYC.
PT for almost 3 years now without any results.
Pudendal Nerve blocks in August,2007 by Dr. Quesda left me with sitting pain.
Unilateral TIR approach with Dr. Bautrant on 18 Febuary,2010 with no major improvements and sitting is much worse.
MRI By Dr. Potter reveals nerve entrapment in the ST,AC and DN.
Dorsal Nerve Decompression surgery on April 8,2011
Redo surgery by Dr. Hibner on July 18,2011
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