Opiate managment and half life taper.

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
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Cora
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Re: Opiate managment and half life taper.

Post by Cora »

One more thing that I wanted to add to my previous post. Buprenorphine for chronic pain is not considered an off-label use. As Ezer said, many physicians currently are reluctant to prescribe it for chronic pain ( does not many any sense to me at all). Again, Butrans is the identical drug and pain doctors readily prescribe that- but my hunch is that some doctors especially pain doctors don't want to get into it because the Sublingual form is most often used with detox and it might raise a flag for a medication audit on the part of the provider. It's honestly the only reason I can think of that would make a doctor hesitant to prescribe.

Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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ezer
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Re: Opiate managment and half life taper.

Post by ezer »

Not to be argumentative but Suboxone and Subutex are prescribed for pain in an off-label basis only. The FDA approved Suboxone and Subutex strictly to treat opioid dependence.
http://www.naabt.org/faq_answers.cfm?ID=10

I was on 30mg/day of Percocet (Oxycodone) and switched to a 10 microgram/hour Butrans (Buprenorphine) patch.
The pain relief was exceptional and around the clock. Also on Butrans, there are no highs. You feel completely normal. You simply replace the patch after 7 days. It is much safer than Fentanyl patches. Fentanyl patches are reservoir based and can leak if damaged while the Butrans patch is matrix based like a Nicotine patch.

Buprenorphine is a newer opiate (UK 1972) but it is not "new" therefore has been tested quite thoroughly and is only a schedule III drug in the US.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
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Cora
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Re: Opiate managment and half life taper.

Post by Cora »

Ezer,
That is true about Suboxone, but not Buprenorphine.
Not trying to be argumentative either, but the two are easily confused.
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
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Cora
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Re: Opiate managment and half life taper.

Post by Cora »

The other thing I want to mention is that "off-label" is often confusing It's done all the time with so many drugs. Compazine is a nausea drug but used for headaches. Seizure meds like gabapentin for chronic pain used to be off-label but now it's approved. Until recently, anti-depressants used for pain was off-label. Trazadone as a sleep medication is an off label use for an anti-depressant. Obviously,some drugs can be dangerous for off label use. Methadone used to be an off-label use for chronic pain but now it isn't. My point I have been trying to make is that if a pain doctor or any doctor who treats pain wants to use Buprenorphine ( not Suboxone) there is nothing limiting them but their own personal practice choices. No legal implications, nothing but their own choice and comfort level and experience. Just trying to clarify.
Cora
Onset PN/PFD/centralized pain in Oct 06 after years of athletics,nursing career and dog training. PT for two years with improvement, now go for tune-ups and pain management. Stopped Cymbalta, was on M.S. Contin, then Kadian, and briefly Methadone for pain management, now off those meds and pain is well managed with Buprenorphine. Followed my pain management specialist.
Grammy
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Re: Opiate managment and half life taper.

Post by Grammy »

Has anyone use subutex long term for pain--I mean years. I just got off methadone which was great for nerve pain due to apnea. I am going to have another sleep study tomorrow and it will be interesting to see if the apnea is better. I have been off methadone 10mg three times a day for over three weeks and I still feel nauseated most of the time. Interestingly Phenergan seems to help me with the nausea and also the pain. It makes me feel slightly high which is good for me as I am usually exhausted. I have had six reconstructive pelvic surgeries and six failed stim trials so I have been through the mill for 21 years and I can honestly say this condition has completely ruined all of my dreams for a happy busy retirement, I am currently 68 and this started after a hysterectomy when I was 48. The hysterectomy caused severe prolapses and I have so much damage no doctor will do more surgery. My depression is always there and I just find myself in an endless pit. My advice to anyone is do not have a hysterectomy unless it is absolutely life saving. Grammy
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Violet M
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Re: Opiate managment and half life taper.

Post by Violet M »

Grammy, you could PM Cora about this medication. She posted about it awhile back and last I knew she was still using it successfully. http://www.pudendalhope.info/forum/view ... 781#p43781

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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ezer
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Re: Opiate managment and half life taper.

Post by ezer »

Grammy,
You should try Butrans patches (same active ingredient as Subutex) that are designed for pain management. They work very well and around the clock.
In terms of pain relief long term, Buprenorphine is like all opiates. You become tolerant and you have to up your dosage. There is no miracle.
2002 PN pain started following a fall on a wet marble floor
2004 Headache in the pelvis clinic. Diagnosed with PNE by Drs. Jerome Weiss, Stephen Mann, and Rodney Anderson
2004-2007 PT, Botox, diagnosed with PNE by Dr. Sheldon Jordan
2010 MRN and 3T MRI showing PNE. Diagnosed with PNE by Dr. Aaron Filler. 2 failed PNE surgeries.
2011-2012 Horrific PN pain.
2013 Experimented with various Mind-body modalities
3/2014 Significantly better
11/2014 Cured. No pain whatsoever since
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