Just had Bilateral Pudendal Nerve Decompression

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Violet M
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Joined: Mon Sep 06, 2010 6:04 am
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Re: Just had Bilateral Pudendal Nerve Decompression

Post by Violet M »

Judy,

Oops, I hate getting timed out. I need to talk to our forum administrator about increasing the amount of time before getting timed out if possible. I don't know if they can or not. I've learned to copy and paste before I hit submit if I think my post might get lost but it's easy to forget.

It's hard to say a timeline since each person is different but typically (sort of) there might be a flare-up at 3-4 months as the nerve wakes up and then by 10 months or so you may start to slowly notice improvements. I went off narcotics at 9 months but I wasn't pain free yet. By 18 months I could count on a good day and sit quite a bit but continued to see improvements even after that. I know it sounds like forever but at least you know now that the nerve is released and has a chance to heal. Sounds like you were in good hands for the surgery especially with Dr. Vancaillie there. He has such an excellent reputation.

Well, just be careful and avoid anything that gives you a pain flare-up. Wishing you a speedy recovery!

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
ElizaM
Posts: 12
Joined: Tue May 12, 2015 4:15 am

Re: Just had Bilateral Pudendal Nerve Decompression

Post by ElizaM »

How are you doing now Judy? You would be a year out now from your surgery. I had surgery a week ago from Prof Vancaille and Dr Loefler. I would appreciate any tips you can give me for recovery. At the moment the pain is very bad. Thanks Eliza
PN Left sided started April 2013 after TVT sling surgery for stress incontinence. Nov 2013 surgery reviewed by another surgeon and sling removed as found to be incorrectly inserted on left side. Pain gradually increased. 2014 Prof Vancaille diagnosed PN. PT, nerve blocks, botox, pulsed radio frequency tried with no success. PNE diagnosed by MRI result. July 2015 Pudendal nerve release surgery with Prof Theiry Vancaille and Dr Loefler.
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