Centre for Pudendal Nerve Disorders in Toronto, Canada

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Lernica
Posts: 960
Joined: Fri Jan 14, 2011 10:31 pm

Centre for Pudendal Nerve Disorders in Toronto, Canada

Post by Lernica »

Dr. Allan Gordon, Neurologist and Director of the Wasser Pain Management Centre at Mount Sinai Hospital in Toronto, is putting together a proposal for a Centre for Pudendal Nerve Disorders at the hospital. Its purpose would be to increase the ability to diagnose and treat patients with pudendal neuropathy in a timely and efficient manner. The centre would provide consultations, administer pudendal nerve blocks and botox injections, and perform pudendal nerve decompression surgery. At present there is no surgeon in Canada who performs this surgery. His proposal includes training a urologist to perform the surgery.

Dr. Gordon would welcome comments on his proposal, particularly from patients in Canada. Very brief comments may be sent to Dr. Gordon at the following email address:

gordonal2013@gmail.com

He would like to use patients' comments to support his proposal. Privacy is assured upon request.
Athlete until pain started in 2001. Diagnosed with PN in Nov. 2010. Probable cause: 3 difficult labors, 5 pelvic surgeries for endometriosis, and undiagnosed hip injuries. 60% better after 3 rounds of shockwave therapy in Cornwall, Ontario (Dec - Feb/12). 99% better after bilateral hip scopes for FAI and labral tears (April and July/12). Pelvic pain life coach Lorraine Faendrich helped me overcome the mind/body connection to chronic pain: http://www.radiantlifedesign.com
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: Centre for Pudendal Nerve Disorders in Toronto, Canada

Post by janetm2 »

Lernica,
This is great news and what we have been waiting to see for future sufferers. Let us know how it comes along.
Jannet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
nyt
Posts: 1165
Joined: Sun Oct 31, 2010 3:24 am

Re: Centre for Pudendal Nerve Disorders in Toronto, Canada

Post by nyt »

Fantastic news!
2/07 LAVH and TOT 7/07 TOT right side removed 9/07 IL, IH and GN neuropathy 11/07 PN - Dr. Howard
6/08 Obturator neuralgia - Dr. Conway 11/08 Disability, piriformis syndrome - Dr. Howard
4/09 Bilateral obturator decompression surgery, BLL RSD - Dr. Howard
9/10 Removed left side TOT, botox, re-evaluate obturator nerve - Dr. Hibner
2/11 LFCN and saphenous neuralgia - Dr. Dellon 2/11 MRI with Dr. Potter - confirmed entrapment
5/11 Right side TG - Dr. Hibner 2012 Left side TG - Dr. Hibner
catherine a
Posts: 291
Joined: Sat Sep 18, 2010 4:46 am
Location: Perth Western Australia

Re: Centre for Pudendal Nerve Disorders in Toronto, Canada

Post by catherine a »

Great to hear this news. Another doctor willing to learn more and go all out to help sufferers in Canada.

Catherine
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
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