My thoughts of you all

Here is an area to discuss and relate to Spiritual matters....share a thought, happy moment, cry on a shoulder, offer some faith to those in need. This area will not be viewable to non registered users.
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vickinmn
Posts: 12
Joined: Sat Oct 30, 2010 8:16 pm

My thoughts of you all

Post by vickinmn »

Yesterday afternoon I was lying on the couch, reading so many of your stories and I have been overwhelmed with a great respect for all of you and all you have endured and that in the midst of this very hard thing, your faith is still intact. I think of Joni E. Tada and her faith and how God has used her life to point so many to the Savior. I was able to hear of your faith under trial and it has been a blessing to me. Many of my prayers this morning were for you all. Love, Vicki
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Karyn
Posts: 1655
Joined: Fri Sep 17, 2010 12:59 pm
Location: Lowell, MA

Re: My thoughts of you all

Post by Karyn »

Thank you, Vicki. Your post and kind words are very much appreciated. I've had the privledge to communicate with some of the bravest, most courageous, kindest, compassionate people I've ever met. The "silver lining" of my PNE experience has been this group and I feel so very fortunate!
With love,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
pianogal
Posts: 437
Joined: Mon Sep 20, 2010 2:11 am
Location: Orange County, CA

Re: My thoughts of you all

Post by pianogal »

Thank you Vicki, your care shines through. God bless you!
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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A's Mommy
Posts: 447
Joined: Fri Sep 17, 2010 12:46 pm
Location: Pennsylvania
Contact:

Re: My thoughts of you all

Post by A's Mommy »

vickinmn wrote:Yesterday afternoon I was lying on the couch, reading so many of your stories and I have been overwhelmed with a great respect for all of you and all you have endured and that in the midst of this very hard thing, your faith is still intact. I think of Joni E. Tada and her faith and how God has used her life to point so many to the Savior. I was able to hear of your faith under trial and it has been a blessing to me. Many of my prayers this morning were for you all. Love, Vicki

Vicki,

A lady in my gospel choir just sent me a CD that I received in the mail today: A Place of Healing by Joni E. Tada

I am so down today. I just think it's funny you mentioned Joni--- I know nothing about her, but this CD came today and maybe I should really pop it in.

A's Mommy
Daughter grew completely on left side of pelvis
Multiple uterine surgeries to fix uterine adhesions, septum, and endo
Had all the conservative workups done, 3Tesla (Potter), recovering from L sided TG (Hibner) 11/10, Botox 6/11 failed, bilateral anterior PNE decompression (distal Alcock's/perineal branch), Aszmann, Vienna, 10/11; dx'd with CRPS Type 2, 12/11, Ketamine @ CCF 2/12, doing 75% better PRAISE JESUS!
http://fighting-pne.blogspot.com
http://www.thepelvicmessenger.org
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