Hello All

[Gary]

Please help

[Gary]

I need

[calluna]

Gary, if you are having thoughts about suicide, please please please take this seriously. You have mentioned it on here more than once, I remember this, and I can hear how unhappy you are, I am so sorry that things are difficult for you at the moment.

You can ring the Samaritans - 08457 90 90 90 - they are wonderful. Or ring NHS Direct on 111 and ask them for emergency psychiatric help - the GP out of hours service will help you as well.

Please stay in touch and let us know how you get on.

[Gary]

I am

[Violet M]

Gary are you able to contact Dr. Barnanowski for advice? He takes NHS patients, I believe.

I know people (or of people) who had a second PNE surgery who are doing great now. All hope is not lost because you do still have some options. Can your girlfriend come on this website and read enough to find out that she is completely misinformed and that you are not just doing this to be selfish? If she is unwilling to educate herself and chooses to remain uninformed, then she really is not a compassionate person and I think maybe not the type you want anyway.

Please fight to get your life back, Gary. There are docs and treatments out there that can help you.

Violet

[Gary]

I have

[Gary]

I guess

[Violet M]

Gary, I wish you all the best with your 2nd surgery. It's a tough decision I'm sure but I hope you can get back to where you were before the symptoms came back.

I had some difficulty walking before my first surgery, especially with the right leg on the side that was the most painful. I was limping and sort of dragging that one leg behind me. Not sure what the reason was but I'm happy that since PNE release surgery I can walk normally now.

Violet

[Gary]

Hello all.

I had a bit of depression about all this and removed my posts. This is not helpful to members, so sorry about that.

Here I am nearly 5 months down the line with PNE part 2.

I was ten years cured after my first surgery, and by cured I mean cured.

I tried to continue working with this latest round of PNE, but I think the more damage you cause to the nerve whilst entrapped, the less likely your recovery or the slower your recovery. So I have only worked 3 weeks this year and the rest of the time, mostly, I have layed down on my back.

My symptoms this time similar to last time.

PNE isn't just about sitting pain. My pain can be there during/after sitting, walking, standing, laying down .. I have no orgasm.. constipation..

I feel strangely disconnected from it all.

Does anyone know, do any Europeans know whether Prof Robert's new private clinic accepts S2 forms? Does Professor Robert's new clinic provide state-funded operations for its citizens (some private clinics do)? A private clinic that offers its citizens state-funded treatment will accept S2 forms. I have been asking this for 5 months but have got no answers. This is annoying because I have surgery booked for June 26th, but unless I find the answer to this question I may find I cannot afford surgery. I need NHS England help with costs. I need to know whether Prof Robert's new clinic accepts S2 forms.

I need surgery again. I want surgery again.

[Positivepoppy]

Gary please stay strong though I hugely appreciate that it's not easy when suffering chronic pelvic pain. I try not to project too much into the future but take each day as new day and always manage to find something in that day to make me smile.
I really hope you are able to have the surgery you so desperately need. I had bilateral surgery in Bristol UK in Jan 2014 under the care of Mr Greenslade and Mr Wong. I think they have offered this on the NHS but don't quote me as I went private.
I really wish you all the best and hope you find s support and positivity from this forum.
Take care of yourself as we are all special and unique