OK everybody.
Post your symptoms in short phrases as if you were searching for them in google. Post all your symptoms. Do this so that pudendalhope.info will come up in search engines so that other people will find us and find out they have PNE and get an answer for why it hurts when they sit. The more people post, the more google will think it's important and move it to the top. It's ok to repeat what I've said. When we google "dorsal nerve to the clitoris" our forum comes up first... and that was accidental. Let's make this happen intentionally so when people are hurting and googling, they can get an answer!
Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
Feels good to sit on a toilet seat.
Vagina hurts, hurts in sit bones (thankfully mostly gone, just moved to labia for me), hurts in labia, burning, shards, frequent urination, pain pre-urination, pain pre-bowel movement... hurts to have intercourse (thankfully that one is gone now)
I wanna sit comfortably again!
Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
-straddle fall age 4-7 w/bleeding labia, tampons hurt in teens, papsmere started annoying pelvic 'tingling' & pne in 02
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
-obturator surgery w/ Filler in 05 (useless, created sciatic & plantar fascitis pain)
-TIR surgery w/ Bautrant in 08 and vestibulectomy in 08 in France (vest. removed pain w/intercourse, pain w/sitting increased post surgery)
-chronic fatigue & food allergies/migraines (gluten, milk) from pain meds in 08
-want a life back. I'm 34 w/8+ years of pain
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- Posts: 157
- Joined: Sat Sep 18, 2010 3:12 am
- Location: Oklahoma
Re: Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
Great idea! Here's some symptoms I've experienced during my 18 months or so with this condition.
labia pain
rectal burning
hurts to sit
pain at sit bones
pelvic muscle spasms
pain with sex
vulva shocks
bladder spasms
pain relief toilet seat
sitting pain
pain with bowel movement
pubic bone pain
vulva burning
labia pain
rectal burning
hurts to sit
pain at sit bones
pelvic muscle spasms
pain with sex
vulva shocks
bladder spasms
pain relief toilet seat
sitting pain
pain with bowel movement
pubic bone pain
vulva burning
2008: mild pelvic pain and PFD began
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
2009: true PN/PFD pain, two PN blocks, normal PNMLT
2010: PT and conservative management with moderate improvement in PN/PFD symptoms
2011: surgery for extensive endometriosis; arthroscopic hip surgery to repair labral tear and FAI (right hip)
2012: C-section delivery of first child
2014: arthroscopic hip surgery to repair labral tear and FAI (left hip); C-section delivery of second child
Ongoing physical therapy since 2010 for both pelvic floor and hips.
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- Posts: 291
- Joined: Sat Sep 18, 2010 4:46 am
- Location: Perth Western Australia
Re: Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
Me too: Following hysterectomy and pelvic floor repair my symptoms were:
burning genital pain.
Intense pain when sitting
numbness in buttocks
pain in rectum
Pain in sit bone.
Sexual dysfunction.
muscle spasms.
Myalgia in pelvic area. (painful pelvic muscles.)
Burning Scald like feeling on thighs and butt.
Feels like crushed or broken glass inside vagina and rectum.
Feeling like there's something stuck inside vagina and rectum.
Dragging, heavy feeling like my insides were falling out. (Like I was dragging a tail behind like a kangaroo.)
Feeling like I was giving birth and it was stuck between my legs.
Pain increases after bowel movement.
Pain relief sitting on toilet seat.
No pain upon wakening in the morning, but starts as soon as I'm awake and making first move to get out of bed.
Burning pain in vulva gets worse as day goes on.
Raging red vulva and vagina.
Lower back pain.
Painful coccyx
Chronic constipation.
Slow urine flow.
leaking bladder.
burning genital pain.
Intense pain when sitting
numbness in buttocks
pain in rectum
Pain in sit bone.
Sexual dysfunction.
muscle spasms.
Myalgia in pelvic area. (painful pelvic muscles.)
Burning Scald like feeling on thighs and butt.
Feels like crushed or broken glass inside vagina and rectum.
Feeling like there's something stuck inside vagina and rectum.
Dragging, heavy feeling like my insides were falling out. (Like I was dragging a tail behind like a kangaroo.)
Feeling like I was giving birth and it was stuck between my legs.
Pain increases after bowel movement.
Pain relief sitting on toilet seat.
No pain upon wakening in the morning, but starts as soon as I'm awake and making first move to get out of bed.
Burning pain in vulva gets worse as day goes on.
Raging red vulva and vagina.
Lower back pain.
Painful coccyx
Chronic constipation.
Slow urine flow.
leaking bladder.
2004 PNE following vag. hysterectomy and A & P repair. 2007 TIR surgery France. severe entrapment at Alcocks canal & SS ligaments . Have my life back. 90% cured.No longer have medical appts.or physio.Some pain remains but is tolerable. 2012 Flew from Australia to the UK without pain flare. Very manageable. Almost back to normal. Now hold support group meetings at KEMH Subiaco Perth WA. Every 2nd Sat. of the month. Still pace my activities. PN doesn't dominate any more.
Re: Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
My symptoms are:
pain when sitting
constipation
sexual dysfunction
frequent urination
pain when sitting
constipation
sexual dysfunction
frequent urination
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- Posts: 2
- Joined: Tue Feb 08, 2011 2:00 pm
Re: Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
After pelvic fracture:
Urethral burning
Bladder pain/spasms
Pain in coccyx
Coccyx pain
Vaginal pain
Pain in clitoral area
Sacral pain
Generalized perineal pain
Sitting intolerance
Urethral burning
Bladder pain/spasms
Pain in coccyx
Coccyx pain
Vaginal pain
Pain in clitoral area
Sacral pain
Generalized perineal pain
Sitting intolerance
Re: Hurts to Sit, Can't Sit, Wanna Sit, Burning when I sit
genital itching
persistant genitla itch
pediatric genital itch
clitoral itch
constant clitoral itch
These are all things I gooogled a 100 times trying to find an answer for my little girl
persistant genitla itch
pediatric genital itch
clitoral itch
constant clitoral itch
These are all things I gooogled a 100 times trying to find an answer for my little girl