pudendal neuropathy

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
Post Reply
User avatar
Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Re: pudendal neuropathy - Baclofen + Ketriplin cream

Post by Violet M »

Georgina wrote:
Reading you can sit for so many hours is like a mirage for me now! :? but I'm so happy for you!and hope I'll get to that point as well!As everyone I want my life back :) thanks for your reply, it really gives some hope!

What was your path to recovery in brief if you don't mind?
best

Georgina
Georgina, I had pudendal nerve release surgery from Dr. Bautrant in France but I don't recommend that as a first step in the process. There are other less invasive things you can try first as I'm sure you've read.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Top
Georgina
Posts: 11
Joined: Wed Feb 20, 2013 10:37 am

Re: pudendal neuropathy

Post by Georgina »

Hi everyone,

I'm back because I HAVE RECOVERED :D :D :D :D :D

I want to share this news because I think it can be of help and support to those who still are suffering!

I found the right cure after 1 year and a half, and that splendid doctor guided me to this point!The quality of my life has improved so much in the last month: I have much less pain, I CAN SIT (!!!!) for hours on my coccyx, I re-started some teaching jobs and when I'm 100% fine I'll look for a "proper" job :) decently paid ;) even loosing my latest job seemed a tragedy...but the important thing is really to get better and then life comes together by itself!

So many times I thought it was too difficult...but I always believed that recovery was possible. I just needed to find the right cure (standford protocol, no medicines) and I thank Prof. Pesce (Italy) and my strong will to recover and get back to life!

I wrote this post also to thank this forum that helped me with lots of info and human support!!!

Hope this post can be a "trigger" to NEVER give up :) trigger is the most appropriate word :lol:

Georgina - real name Erika
Top
janetm2
Posts: 987
Joined: Sun Jun 12, 2011 10:54 pm
Location: Maryland

Re: pudendal neuropathy

Post by janetm2 »

Erika,
Excellent news for the rest of the folks on here looking for that recovery.Thanks for passing it along and best to you for a new job.
Janet
2007-08 pelvic muscles spasms treated by EGS. 6/27/10 sat too long on hard chair- spasms, EGS not work Botox help, cortisone shots in coccyx help, still pain, PT found PNE & sent me to Dr Marvel nerve blocks & MRN, TG left surgery 5/9/11. I have chronic bunion pain surgery at age 21. TG gave me back enough sitting to keep my job & join in some social activities. I wish the best to everyone! 2019 luck with orthotics from pedorthist & great PT allowing me to get off oxycodone.
Top
User avatar
Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Re: pudendal neuropathy

Post by Violet M »

Ericka, that's great news! ;)

I would be interested to hear more details about your recovery. It sounds like maybe you live in Italy so....did you travel to California for the Stanford protocol or did you follow it out of a book? I think sometimes it is called Dr. Wise's protocol since it's not officially associated with Stanford from what I've heard.

Best,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Top
Georgina
Posts: 11
Joined: Wed Feb 20, 2013 10:37 am

Re: pudendal neuropathy

Post by Georgina »

Violet M wrote:Ericka, that's great news! ;)

I would be interested to hear more details about your recovery. It sounds like maybe you live in Italy so....did you travel to California for the Stanford protocol or did you follow it out of a book? I think sometimes it is called Dr. Wise's protocol since it's not officially associated with Stanford from what I've heard.

Best,

Violet
Hi Violet,

no, I didn't come to California :) In Italy there are a handful of doctors who practise the stanford protocol, I immagine personalised according to training and experience with patients. The protocol we followed were internal massages (through vagina and anus) to relax the muscles. I also took some medicines but didn't do much to me. The great leap forward came after 2 months after stopping with Cymbalta 30mg, and after 8 months of massages. So the real cure for me was the release of tensions via anus especially (I had coccyx pain, impossible to sit, no burning). I didn't followed it out of a book therefore, but had a specialised Neuro-urologist to do it 3-4days a month. I had some exercises and simple massages to do at home, but the great job was done by the doctor.
Best,
Erika
Top
User avatar
Violet M
Posts: 6770
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Re: pudendal neuropathy

Post by Violet M »

Thanks for the explanation, Erika. Glad this worked for you and that you are much better. ;)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
Top
Post Reply

Return to “WELCOME CENTER”