PN Effect on Family

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
Antonia
Posts: 48
Joined: Sun Feb 02, 2014 11:56 pm

Re: PN Effect on Family

Post by Antonia »

Kone, my family is not terribly understanding either. I am now getting told to stop crying and getting frustrated in front of the kids, and I don't even know if I have a PN case or not yet. I got a lot of the "nothing is wrong with you" nonsense as well, which changed once they found soft tissue injuries, but not much.

No, people really do not understand. And no one is going to share your pursuit of treatment and getting well except you. I don't say this in self-pity, just because it seems to be true. People act like chronic pain is a mental disorder instead of a physical problem.
Pain starting at ischial tuberosity 2013 (minor hamstring tendon tear); labral tear July 2013, referred pain to groin/bladder. Sept. 24th '13, tore my abdominal muscles and adductors at the pelvis; pain and spasms so bad I couldn't stand, walk, or go to the bathroom; misdiagnosed until Jan. 27th 14; double procedure 4/3/14, hip arthroscopy & muscle repair. One adductor still driving me nuts. Slowly working my way back to health & working to educate more about pelvic injuries/pathologies.
stephanies
Posts: 692
Joined: Mon Oct 25, 2010 3:07 am

Re: PN Effect on Family

Post by stephanies »

Antonia,

PN is very difficult to deal with when you have young children. I am trying to hold myself together right now as well, but please know I am sending you support through the forum for strength and healing.

Stephanies
PN started 2004 from fall. Surgery with Filler Nov. 2006, Dr. Campbell April 2007. Pain decreased by 85% in 2008 (rectal and sitting pain resolved completely), pain returned in 12/13. Pain reduced significantly beginning around 11/23.
bikelover
Posts: 93
Joined: Sun Sep 22, 2013 1:47 am

Re: PN Effect on Family

Post by bikelover »

Hello kone, just wondering how you're doing. If it makes you feel any better, I get a sense that even if my wife is aware I have PN or whatever, I feel like she gets uninterested whenever I talk with her about this conditon, my research, experience, etc., or just stops putting me attention alltogether. Fact is, this is our reality wether they like it or not. I can only send you my best prayers, and rest assured, dont feel alone, dont get discouraged, and dont loose hope.
Post Reply

Return to “WELCOME CENTER”