Back problems causing PN symptoms

Many physical activites such as sports, pelvic surgery, etc can all contribute to PN
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lindsayg
Posts: 61
Joined: Sat Mar 24, 2012 3:43 am

Back problems causing PN symptoms

Post by lindsayg »

I recently had pelvic and lumbar MRI's and several problems showed up regarding my lumbar spine. Mostly a lot of osteoarthritis and moderate spinal stenosis in L3-4 and L4-5. Has anyone had back surgery and found the PN symptoms went away? I've heard a lot of conversation about PN coming from back trouble and am lost as to what my next move should be.
Thank you.
Lindsay
Diagnosed with vulvadynia 2009
Diagnosed with PFD 2011 Dr. Andrew Goldstein in D.C. Started pt for one year, didnt help
Diagnosed with PN Dr. John McDonald UCLA Jan. '12
Had 3 pudendal nerve blocks with Dr. Hibner 2012
Had Botox shots Oct '12. Worked great for 6-7 weeks. Had them again Feb.14th 2013 didn't help
Am currently being treated by Dr. Prager in LA.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Back problems causing PN symptoms

Post by HerMajesty »

My PN arose from my sacrum at S2 and as I recover from surgery I am recovering from PN, although the S2 nerve roots were compressed for 8 years so I am not sure I will ever be totally asymptomatic. I'm not sure that compression of the lumbar nerve roots correlates at all with pudendal symptoms; but if there is stenosis of the spinal canal causing pressure on the spinal cord itself, I think anything below the level of the compression could potentially be affected. I would be surprised however if that would manifest as PN alone. I would expect it to cause general issues with the lower half of the body, such as leg pain or weakness in addition to PN. Even with a problem as low as S2, I had much more global issues than just PN.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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Violet M
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Re: Back problems causing PN symptoms

Post by Violet M »

Lindsay, my understanding is that radiculopathies in the spine rather than the pudendal nerve can cause pudendal neuralgia symptoms and that it can be difficult to distinguish between a peripheral pudendal nerve injury as opposed to a spinal radiculopathy. In the abstract of Dr. Bautrant's article it states that 12 of the people were rejected for the study because it was deemed that they had spinal radiculopathy rather than peripheral nerve injury. You can find the article at this link: http://www.pudendalhope.info/sites/defa ... utrant.pdf Here is an excerpt from the article. (The original article was in French)

"The pudendal nerve (n.pudendus) may be
submitted to many forms of trauma along its
course either inside or outside the spine (fig.1)
If the medullary or radiculo-plexus conflict can
be at the origin of perineum neuralgia of the
pudendal type by neurological pathology or
lombo sacral [6], the progress and neurological
and physiological exploration of the perineum
allow us to distinguish from the impairment to
the pudendal nerve itself [7]."

Even with a peripheral PN injury as opposed to a spinal pathology, there can be many more symptoms than just in the distribution of the PN. At least there were in my case. The reason is that muscles of the pelvis such as the piriformis can go into spasm in response to the PN pain and cause sciatic-type symptoms clear into the foot and difficulty walking (which is what I had). Also, PN/PNE often does not occur in a vacuum as the only pathology. There may be other accompanying problems such as SI joint dysfunction, laxity in the ligaments, etc. that are contributing to a nerve entrapment. So, it's not an easy diagnosis especially since there are many variations of the disease in the PN patient population. It can be very difficult to determine whether your pain is due to a spinal radiculopathy or a peripheral pudendal nerve injury. Dr. Bautrant relies a lot on the pelvic exam where he presses along the course of the nerve to determine if two of the most common areas of PN entrapment (the area at the ischial spine and alcock's canal) are tender.

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
lindsayg
Posts: 61
Joined: Sat Mar 24, 2012 3:43 am

Re: Back problems causing PN symptoms

Post by lindsayg »

Thank you Her Majesty and Violet for responding. Her Majesty, I hope your surgery is successful and in time your PN issues resolve as well. Violet, why doesn't it show in "new messages" when someone has responded?
Lindsay
Diagnosed with vulvadynia 2009
Diagnosed with PFD 2011 Dr. Andrew Goldstein in D.C. Started pt for one year, didnt help
Diagnosed with PN Dr. John McDonald UCLA Jan. '12
Had 3 pudendal nerve blocks with Dr. Hibner 2012
Had Botox shots Oct '12. Worked great for 6-7 weeks. Had them again Feb.14th 2013 didn't help
Am currently being treated by Dr. Prager in LA.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Back problems causing PN symptoms

Post by HerMajesty »

Lindsay,
So far so good...I won't be posting a success story until I know the absolute final outcome which takes more time...but I am much better and doing tons more in terms of work and physical activity. So I am living proof that PN can originate in your back.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
bikelover
Posts: 93
Joined: Sun Sep 22, 2013 1:47 am

Re: Back problems causing PN symptoms

Post by bikelover »

The pudendal derives from the sacrum, not the lower spine. Unfortunately I don't think syrgery at the L's will fix the S's, though I'm no expert.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: Back problems causing PN symptoms

Post by HerMajesty »

The pudendal does derive from the sacrum (which is part of the lower spine: the vertebrae are simply fused at the lowest level). However, stenosis is a narrowing of the spinal canal, so it has the potential to impinge on nerve conduction from the point of compression on down. In that sense, lumbar stenosis can effect the sacral nerves - symptoms would be in similar distribution to cauda equina syndrome, although not as acute.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
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