After spending a bunch of money to go down to Houston to see the "Ansell Team" I feel a bit let down. I gathered a lot of information but didn't feel like I had any good treatment options once I left. I live in a rural area and if I wanted to go see a pundendal PT I'd have to drive 3 hours each way. I was debating on having surgery with Ansell but hearing from his surgery coordinator that he was "phasing out" I decided that I couldn't possibly go through with surgery, at least with him. I want somebody that cares and will actually be around if there are complications.
So my question to you all out there....Who do you recommend I go see? Who are the top docs out there (besides Ansell) for surgery? What did you think about your experience with your pundendal doc? Is there any hope??
Thanks.
Matt
Best Doctors for Pundendal in the USA?
Re: Best Doctors for Pundendal in the USA?
Hi Matt,
I've had a very good experience with Dr. Conway in NH. He's available to all post-op patients, whether you need to see him, or speak with him over the phone. His office staff is excellent, too.
I'm sorry things didn't work out for you with Dr. Ansell. I wish you the best with this very difficult decision.
Kind regards,
Karyn
I've had a very good experience with Dr. Conway in NH. He's available to all post-op patients, whether you need to see him, or speak with him over the phone. His office staff is excellent, too.
I'm sorry things didn't work out for you with Dr. Ansell. I wish you the best with this very difficult decision.
Kind regards,
Karyn
Ultra Sound in 03/08 showed severely retroverted, detaching uterus with mulitple fibroids and ovarian cysts.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Pressure and pain in lower abdomen and groin area was unspeakable and devastating.
Total lap hysterectomy in 06/08, but damage was already done.
EMG testing in NH in 04/10 - bilateral PN and Ilioinguals
3T MRI at HSS, NY in 09/10
Bilateral TG surgery with Dr. Conway on 03/29/11. Bilat ilioinguinal & iliohypogastric neurectomy 03/12. TCD surgery 04/14.
Re: Best Doctors for Pundendal in the USA?
Hello,
Dr Hibner met/exceeded my needs and expectations. Caring and experienced...
Take care,
Bob
Dr Hibner met/exceeded my needs and expectations. Caring and experienced...
Take care,
Bob
Cyclist till perineal pain onset R side (Apr'08). Dx with PN (Aug'09). Lyrica gave 30% pain reduction. Potter MRI (Oct'10) validated at surgery with Dr Hibner (Nov'10) - found nerve attached to scarred STL. Now sitting 10 hrs/day vs 1 hr/day pre-op. Surgery video = http://www.youtube.com/watch?v=6FDwana6SQU
Deep neuropathic burning pain flares have been gone since surgery...Grateful to Dr Hibner.
Deep neuropathic burning pain flares have been gone since surgery...Grateful to Dr Hibner.
Re: Best Doctors for Pundendal in the USA?
Hello,
I do not know how reliable is this info but my PT was visiting some PN conference for PT and she was told that Dr. Conway and Dr. Hibner are the best.
I hope it helps,
Helen
I do not know how reliable is this info but my PT was visiting some PN conference for PT and she was told that Dr. Conway and Dr. Hibner are the best.
I hope it helps,
Helen
8 nerve blocks rel 6 w.Met Dr. Peters,Dr. Antolack.Dr. Peters pacemaker,Dr Antolack TG operation.Maigne s.Internal PT at Dr Peters Nothing.PFCN block rel 6 w. PFCN RFA.Nothing.SI joint RFA.Nothing.Left scar tissue removal.Good.SIJD. PT of SI joint ME, and Prolo of SI and PS.Lumbar spine facets turned left. ME. T10-12 facets too wide.T10 turned left.ME and Prolo.Labral tears in left hip, spurs.Will have operation at 09/18/13,Met with Dr Conway.EMG shows left PN problem.Good impression of Dr C.
Re: Best Doctors for Pundendal in the USA?
Thanks for the info guys & gals. Keep the info coming 
If anybody else has experience with either of these docs or others who were great docs please let me know.
Thanks!
Matt
If anybody else has experience with either of these docs or others who were great docs please let me know.
Thanks!
Matt
Re: Best Doctors for Pundendal in the USA?
Since Dr Ansell no longer does PNE surgery, who is the best doctor?