Erythromelalgia

[Dave]

Does anyone suffer from erythromelalgia in the feet or other part of the body?

http://en.wikipedia.org/wiki/Erythromelalgia

[Violet M]

Haven't heard of it Dave. It looks painful.

Violet

[emgw123]

Yes. I have erythromelalgia. My pudendal issues began a few years earlier. It has just gotten progressively worse. At least now the doctors have something they can see to treat and take me seriously. I was just diagnosed with the EM a few weeks ago. Any luck with your treatment?

[Meliora]

I have wondered about this condition. My hands/knuckles and somewhat feet turn red a lot, and have for years. They really do when its warmer. I do not have the pain though, but have other symptoms in general. Well I say I have no pain, my feet do cause me issues. I certainly have PN pain. What are your symptoms?

[Dave]

My erythromelalgia is in my feet only. The problem is mainly with my left foot, which corresponds with the left pudendal nerve which is most problematic.

I get pain from walking and standing. The pain skyrockets when my feet get too warm or I'm on them for two long. When that happens, blood rushes into my foot, and it turns red and hot to the touch.

[Meliora]

My feet hurt and tingle when too hot. If I wear tennis shoes on a hot day, I want to tear them off! How did you get a diagnosis for this? I have had several doctors mention the color of my hands they are just perplexed.

[Dave]

I had to show a photograph of my feet during an attack and suggest the diagnosis to several doctors. Most couldn't make a diagnosis.

Unfortunately, most of the same medications used to treat EM are the same ones used to treat PN. And therefore, the diagnosis doesn't buy all that much.

[katewinslet]

Honestly, the botox did not help. I don't know if it's because my stress quadrupled right after I had the botox done and my depression came back, which always makes my headaches work, or it just didn't work. I know someone who swears by it. I'm debating whether to give it another try or not, I have to speak to my doctor