any decent pain docs in Milwaukee area??

Discuss different Pain Management Options; Medication options including side effects and Worldwide variances in names etc.
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deBBieW
Posts: 162
Joined: Tue Oct 25, 2011 2:59 am
Location: Milwaukee, Wis

any decent pain docs in Milwaukee area??

Post by deBBieW »

I know I've asked this before, but its been a while. I'm still looking for a new doc in the Milwaukee, Wi area.
I have ruled out the 3 that are in my current health care facility. One of them down right rejected me, just because its pelvic pain.
I just want someone to manage my meds and maybe think outside the box.

Any suggestions on good websites to research for pain docs?

Thanks.
Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
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Violet M
Posts: 6832
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
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Re: any decent pain docs in Milwaukee area??

Post by Violet M »

Debbie, if you google for pelvic floor PT's in Milwaukee there are several that come up. They might know a good doc who manages pelvic pain.

Best,

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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deBBieW
Posts: 162
Joined: Tue Oct 25, 2011 2:59 am
Location: Milwaukee, Wis

Re: any decent pain docs in Milwaukee area??

Post by deBBieW »

Sorry I should have said I tried BOTH of my therapists, they are not happy with the docs they have had experience with.
That's why im still searching. I need someone that can work on my centralized pain in my legs, if that's what it is for sure?
Another one of my questions that hasn't been answered.

Thanks Violet.....
Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
Top
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: any decent pain docs in Milwaukee area??

Post by helenlegs 11 »

Is the leg pain in a particular place(s) Debbie that has been identified as say 'the path of the sciatic?' or other nerve? as you describe a burning which is usually associated with nerve pain?
Sorry you are still searching for a forward thinking clinician.
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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deBBieW
Posts: 162
Joined: Tue Oct 25, 2011 2:59 am
Location: Milwaukee, Wis

Re: any decent pain docs in Milwaukee area??

Post by deBBieW »

Hi Helen,
No it's not sciatic, its more a feeling of being very sunburn, and sort of prickly, or prickly burny. It's mainly the front of my thighs, around my whole knee, and can go into the lower leg when it really flares. I believe it's some type of centralized pain, or myofascial? I get different answers all the time. I also have occasional sensations in the top of my left foot burny-numby, only the top near my toes. Never on the back of the foot, or soles.
The legs feel best when I wake up, and some days it's like a 1, and then it can flare with too much stretching or deep tissue massage.... Or for no apparent reason....it will flare to a 4-5 in minutes. Then it's take a Vicodin time :lol:

Thanks for asking... I'm going to see Jerry Hesch tomorrow. Lets see what this PT has to say about my pelvic torsion.
I'm sure ill be adding some stretches to my collection.

Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
Top
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: any decent pain docs in Milwaukee area??

Post by helenlegs 11 »

It does sound like a regional pain syndrome/central sensitisation kind of problem to me Debbie, but then I am only medically educated thru the HOPE FORUM, internet and pain ;)
From what I know about Jerry Herch, he is a great person to see. He really knows his stuff and truly wants to help people.
Let us know how it goes .
Helen
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
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Violet M
Posts: 6832
Joined: Mon Sep 06, 2010 6:04 am
Location: United States
Contact:
Contact Violet M

Re: any decent pain docs in Milwaukee area??

Post by Violet M »

Sorry you can't find some good pain mangement there, Debbie. Maybe it would be worth it to check out Madison -- possibly the docs at U of Wis since they have a medical school and may be more on the cutting edge?

I'm interested to hear how your meeting with Jerry Hesch went. ;)

Violet
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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deBBieW
Posts: 162
Joined: Tue Oct 25, 2011 2:59 am
Location: Milwaukee, Wis

Re: any decent pain docs in Milwaukee area??

Post by deBBieW »

Thanks Violet...I had 2 sessions with Jerry, and I will be posting under a new thread under PT.
I would love a recommendation before just trotting off to a new clinic blindly. I'm getting a new GP in April, so I will bug her too.

Debbie
Vag pain, leg burning 3/11, SIJ inj 7/11, Pelvic PT, Chiro/acupuncture,
2-CT pudendal blks 11/2012, did help, less deep vag pain
Potter MRI 04/2012 - Scar tissue/thickening at SS/ST, scar in Alcock canal -bilateral,
Hibner 6/12 suggests Botox (didnt do), 8/12 more pelvic PT w/ dry needling
Gabapentin 1800 mg, Lyrica 200 mg, 5mg valium, vicodin as needed
Trying to get rid of central sensitization burning pain in my legs, Valium seems to be helping
Looking into more mindfulness options. . . . .
Top
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