TMan, I don't remember anyone ever trying the neurostim before PNE release surgery but I can understand why you would want to when you are in such high pain levels and needing to work. I agree with Calluna, your courage and attitude are admirable. I hope the procedure goes well for you and that you get some significant pain relief!
Best,
Violet
ICE
Re: ICE
PNE since 2002. Started from weightlifting. PNE surgery from Dr. Bautrant, Oct 2004. Pain now is usually a 0 and I can sit for hours on certain chairs. No longer take medication for PNE. Can work full time and do "The Firm" exercise program. 99% cured from PGAD. PNE surgery was right for me but it might not be for you. Do your research.
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Re: ICE
Violet,
I did some background research on this but like you say there isnt anyone out there that did the Stimulator first. My pain has been high since the flare now going on a solid 8 weeks and I gotta do something or I risk losing my job.. The good news is I get to trial it first so we will worry about the long term ramifications if that goes well.
I know i am in uncharted waters here but its in my adventurous nature to try something different. I appreciate the support, it means more than you can possibly know! Plus, there are people here wanting to know if it works and I am more than happy to try anything and pass along the results to those that are suffering and in need of help.
Matt
I did some background research on this but like you say there isnt anyone out there that did the Stimulator first. My pain has been high since the flare now going on a solid 8 weeks and I gotta do something or I risk losing my job.. The good news is I get to trial it first so we will worry about the long term ramifications if that goes well.
![Very Happy :D](./images/smilies/icon_e_biggrin.gif)
I know i am in uncharted waters here but its in my adventurous nature to try something different. I appreciate the support, it means more than you can possibly know! Plus, there are people here wanting to know if it works and I am more than happy to try anything and pass along the results to those that are suffering and in need of help.
Matt
Symptoms started officially on Feb 21, 2012 w/no known cause! Multiple pain flares, ER Visits and tests (had 3T MRI in New York by Hollis Potter). Inconclusive MRI, but finally diagnosed with PN in 2013. Boston Scientific SCS implant surgery done on May 3, 2013.. SCS Implant no longer effective in relieving pain. Condition has deteriorated rapidly since a fall off a ladder in March 2014 (suffered trimalleolar fracture of right ankle). Surgery Consult with Dr. Conway scheduled for June 4. 2015.