New...scared and need advice please!

Welcome to HOPE. We have tried to provide a place for newcomers to make their introductions. We will try our best to make you welcome and guide you through our website and Forum and assist you as best as we can through any questions you have regarding Pudendal Neuralgia.
HerMajesty
Posts: 1134
Joined: Sat Sep 18, 2010 12:41 am
Location: North Las Vegas, Nevada

Re: New...scared and need advice please!

Post by HerMajesty »

Good move with the MRN.
From what i have heard from people who have had discograms, it is an unpleasant procedure but an excellent diagnostic tool. If a disc is incompetent to the point where it is torn and leaking, it may not only be causing spinal compression but also / instead, chemical radiculopathy. This is where leakage from the disc changes the chemical environment around the nerve roots and leads to an immune reaction. The result is that even in the absence of compression, there can be a severe disruption of the spinal nerve roots. The discogram can show a leak; and also show whether a disc herniation is putting pressure on the spinal cord and/or nerve roots. If it is your choice whether to take this test, it would probably be a good idea.
pelvic pain started 1985 age 14 interstitial cystitis. Refused medical care from age 17, did GREAT with self care for years.
2004 PN started gradually, disabled by 2009. Underlying cause SIJD & Tarlov cysts
improved with PT & meds: neurontin, valium, nortriptyline, propanolol. (off nortriptyline & propanolol now, yay!)
Tarlov cyst surgery with Dr. Frank Feigenbaum March 20, 2012.
Results have been excellent so far; but I won't know my final functional level for a couple of years.
Jessicac
Posts: 18
Joined: Wed Feb 06, 2013 3:59 am

Re: New...scared and need advice please!

Post by Jessicac »

Thank you, I think I will go threw with the discogram. That's very interesting what you just said I had no idea about any of that, really good advice :)

I just need to get to the bottom of this!
Rosemary
Posts: 309
Joined: Mon Dec 31, 2012 5:40 pm

Re: New...scared and need advice please!

Post by Rosemary »

Hi Jess

Do you have the option of deferring your PGCE for a year ? - just to give yourself a bit more time to try and sort things.

A friend of my daughters found her course quite stressful - that was for primary school too.

Rosemary x
Jessicac
Posts: 18
Joined: Wed Feb 06, 2013 3:59 am

Re: New...scared and need advice please!

Post by Jessicac »

Hi rosemary, thank you for the advice, I know that it's really stressful :(

I don't know yet, I was thinking of maybe doing this, but my plan was to do it this sep :( I might have to have a change of career goal altogether if this doesn't calm down, I've always wanted to teach though so it's difficult.

Thank you

Jess
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: New...scared and need advice please!

Post by calluna »

Hello again Jess

Just wanted to point you at this article which I think you might find informative - the author is an American physiotherapist (physical therapist, or PT) and has some interesting things to say about the use of physio for helping PN symptoms. She says that her next post will be about the role of physio for PN, and I expect that will be interesting as well.
Jessicac
Posts: 18
Joined: Wed Feb 06, 2013 3:59 am

Re: New...scared and need advice please!

Post by Jessicac »

Hey calluna, I've just read the article, thank you for that. Stephanie seems to be very knowledgable in this area, so it will be interesting to read her next blog on PT. I am just in a place at the minute where I am struggling to accept this condition, as I refuse to believe that this could be my life. I am trying everything, so thanks again as i want to be as knowledgable as possible in this area.

Jess x
calluna
Posts: 1058
Joined: Mon Sep 27, 2010 11:57 pm

Re: New...scared and need advice please!

Post by calluna »

It was Helen who found it. :)
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helenlegs 11
Posts: 1779
Joined: Fri Sep 17, 2010 9:39 am
Location: North East England

Re: New...scared and need advice please!

Post by helenlegs 11 »

I just said on a different thread how good it was to see so many success stories coming through Jess, so try not to concentrate being stuck like this adinifitum. There is SO much more help out there now and you have us ;) to help too.
I know it isn't fair at all to have a pelvic nerve issue at your age and this pain and worry to contend with but the fact that you are getting treatment early on and you are yonge is totally in your favour and probably outstrips the negatives.
When you think what is on offer, medication, physiotherapy, myofascial release, acupuncture, cognitive therapies, relaxation techniques and then block injections, botox, as well as the more 'unusual' ketamine, ESWT and more . . . . (just can't remeber all of them ;) ) There are many good reasons to be positive about recovery.
Stress, tension and worry could add negatively to your pain. I'm not saying it is an easy thing to acomplish but try to think positively, or as positively as possible about all of this.
Take care,
Helen x
Fall 2008. Misdiagnosed with lumber spine problem. MRN June 2010 indicated pudendal entrapment at Alcocks canal. Diagnosed with complex variant piriformis syndrome with sciatic, pudendal and gluteal entrapment's by Dr Filler 2010.Guided piriformis botox injection 2011 Bristol. 2013, Nerve conduction test positive; new spinal MRI scan negative, so diagnosed for the 4th time with pelvic nerve entrapment, now recognised as Sciatic, pudendal, PFCN and cluneal nerves at piriformis level.
greeneyes
Posts: 45
Joined: Fri Sep 17, 2010 2:43 pm

Re: New...scared and need advice please!

Post by greeneyes »

I thought I'd add my two cents worth about the discogram since I've had two of them. You will probably be partially sedated befoe the test begins so you will relaxed but still awake. The test involves the injection of dye into a disc and photographing ( via radiography) the disk so the doctor can look for defects . The injection is painless unless there is a problem with the disk. The doctor usually begins by injecting a healthy disk and then works downward. In my last discogram there were two disks that were painful. I was given pain medication afterward so the pain didn't last long. Compared to some other procedures I've had the discogram was pretty easy.
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